Patient Resources


To support patient representatives and ERN project managers in this evaluation process, EURORDIS has developed a series of resources breaking down the rational, process and supporting methodology of the AMEQUIS Evaluation. These resources include a Patient Guide, FAQ factsheet and webinar explaining the role of patients / patient representatives in this evaluation.


video has been created for patients that have been selected to take part in the group interview as part of the 5-year evaluation.

Download resources

 Patient Guide (, 380 KB)
 FAQ factsheet (, 84 KB)


ERN 5-Yr Evaluation through the Patient-Lens Webinar
Information video for patients and healthcare professionals

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