Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
To support patient representatives and ERN project managers in this evaluation process, EURORDIS has developed a series of resources breaking down the rational, process and supporting methodology of the AMEQUIS Evaluation. These resources include a Patient Guide, FAQ factsheet and webinar explaining the role of patients / patient representatives in this evaluation.
A video has been created for patients that have been selected to take part in the group interview as part of the 5-year evaluation.
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