Patient Resources

Patient Resources

To support patient representatives and ERN project managers in this evaluation process, EURORDIS has developed a series of resources breaking down the rational, process and supporting methodology of the AMEQUIS Evaluation. These resources include a Patient Guide, FAQ factsheet and webinar explaining the role of patients / patient representatives in this evaluation.

A video has been created for patients that have been selected to take part in the group interview as part of the 5-year evaluation.

Download resources


ERN 5-Yr Evaluation through the Patient-Lens Webinar