Day 1 General Assembly 2024 Presentations

Endo-ERN General Assembly (GA) Day 1

Click presentation title to download.
 

Update Endo-ERN new grant period 2024-2027

Albert Pereira, Endo-ERN Network Coordinator, adult chair


Roadmap to Copenhagen & Transition

Olaf Hiort Endo-ERN Coordinator, paediatric chair 


EU Landscape:  ERDERA Landmark Integration Project 

Recording of presentation

Daria Julkowska, Scientific Coordinator of the European Joint Pogramme on Rare Diseases (EJP RD), and ERDERA, INSERM


EU Landscape:  JARDIN Landmark Integration Project 

 Till Voigtlander, JARDIN Coordinator, Medical University of Vienna 


Dissemination & Communication (WP2)

Aimee Casey, Endo-ERN Communication Manager 


Evaluation (WP3)

Emily White, Endo-ERN Project Manager & Operational Helpdesk Manager  


CPMS & Healthcare (WP4)

Emily White, Endo-ERN Project Manager & Operational Helpdesk Manager 


Education & Training (WP6)

Violeta Iotova, Chair WP6,  UMHAT “Sveta Marina” (Varna), Bulgaria  


Patient journeys

Matt Bolz-Johnson, Mental Health Lead and Healthcare Advisor, EURORDIS