EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Aghia Sophia Children’s Hospital

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Amsterdam UMC

EC Submission submitted:  Pending

Survey submitted: Yes

CM complete:  

Antonio Cardarelli Hospital- Azienda Ospedaliera di rilievo nazionale

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete:  Yes

AOU di Modena

EC Submission submitted:  

Survey submitted: 

CM complete:  

AOU policlinico “G.Martino” Messina

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes 

AOU Università degli Studi della Campania “Luigi Vanvitelli”, Napoli

EC Submission submitted:  Yes

Survey submitted: Yes 

CM complete:  Yes

AOUI di Verona

EC Submission submitted:  Yes

Survey submitted:  Yes 

CM complete:  Yes

APDP – Diabetes Portugal

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Assistance Publique – Consortium Cochin, Robert Debré, Necker, St Antoine,
La Pitié Salpétrière, Trousseau University Hospitals

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete:  Yes

Assistance Publique – Consortium Pitié Salpétrière -French Reference Centre for Prader-Willi Syndrome 

EC Submission submitted:  Pending 

Survey submitted:  Yes

CM complete:  

Assistance Publique – Hôpitaux de Marseille

EC Submission submitted: Yes

Survey submitted: Yes

CM complete:  Yes

Azienda Ospedaliera di Padova (AOP)

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Azienda Ospedaliera Sant’Orsola Malpighi

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes 

Azienda Ospedaliera Universitaria “Federico II”, Napoli 

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Azienda Ospedaliera Universitaria Pisana – Obesity Centre, Endocrinology

Unit

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Azienda Ospedaliero Universitaria Città della Salute e della Scienza di Torino

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Azienda Ospedaliero Universitaria di Ferrara

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Azienda Ospedaliero-Universitaria Policlinico Umberto I

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Azienda Unità Sanitaria Locale-IRCCS of Reggio Emilia 

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Beaumont Hospital (Irish consortium)

EC Submission submitted:  yes

Survey submitted: Pending 

CM complete:  

Centre Hospitalier de Luxembourg

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Centre Hospitalier Universitaire de Liège 

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Centro Hospitalar de Lisboa Norte, EPE

EC Submission submitted:  

Survey submitted: 

CM complete: 

Centro Hospitalar Universitario de São João, EPE

EC Submission submitted:  

Survey submitted: 

CM complete: 

Charité Universitätsmedizin Berlin

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete: Yes

Childrens Clinical University Hospital

EC Submission submitted:  

Survey submitted: 

CM complete: 

CHU Angers

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

CHU Toulouse

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Cliniques universitaires Saint-Luc

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Complejo Hospitalario Regional Virgen del Rocío

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Copenhagen University Hospital, Rigshospitalet

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Department of Molecular Genetics, Function and Therapy, The Cyprus
Institute of Neurology and Genetics

EC Submission submitted:  

Survey submitted: 

CM complete:  

Erasmus MC: University Medical Center Rotterdam

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Evangelismos General Hospital

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milano

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Fundacio de Gestio Sanitaria Hospital de la Santa Creu i Sant Pau

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

General Hospital of Athens “LAIKO”

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Ghent University Hospital

EC Submission submitted:  Yes

Survey submitted:  Yes 

CM complete: Yes 

Hannoversche Kinderheilanstalt, Diabetes Centre for Children and
Adolescents

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:Yes

Helse Bergen HF, Haukeland University Hospital

EC Submission submitted:  

Survey submitted: 

CM complete: 

Hôpital Bicêtre

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete:  Yes

Hôpital Universitaire de Bruxelles (HUDERF-Erasme)

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete: Yes 

Hospices Civils de Lyon

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Hospital of Lithuanian University of Health Sciences Kauno Klinikos

EC Submission submitted:  

Survey submitted: 

CM complete: 

Hospital Sant Joan de Déu Barcelona

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Hospital Universitari Vall d’Hebron

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Hospital Universitario Cruces

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

HUS Helsinki University Hospital, Hospital District of Helsinki and
Uusimaa (EndoERN_FIN)

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Institute of Oncology “Prof dr. Ion Chiricuta” CLUJ NAPOCA

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes 

IRCCS Istituto Giannina Gaslini, Genova

EC Submission submitted:  

Survey submitted: Yes

CM complete: 

IRCCS Ospedale Policlinico San Martino – Genova –  Italy

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere
Scientifico

EC Submission submitted:  Yes

Survey submitted:  Yes 

CM complete: Yes

Karol Jonscher’s Clinical Hospital of Poznan University of Medical

Sciences

EC Submission submitted: Yes 

Survey submitted: Yes

CM complete: Yes

Karolinska University Hospital

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Katholisches Klinikum Bochum

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

Klinikum Wels-Grieskirchen,Center for Pediatric Endocrinology / Dpt. of
Pediatrics

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete:   Yes 

Leiden University Medical Center

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Ludwig-Maximilian-University Munich

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Maastricht University Medical Center – Center for Thyroid Carcinoma

EC Submission submitted:  Yes

Survey submitted:  Yes 

CM complete:  Yes 

Maria Sklodowska-Curie National Research Institute of Oncology (MSCNRIO)

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Mater Dei Hospital

EC Submission submitted:  

Survey submitted: 

CM complete:  

Máxima Medisch Centrum

EC Submission submitted:  Yes

Survey submitted: Yes 

CM complete:  Yes 

Medical University of Vienna

EC Submission submitted:  

Survey submitted: Yes

CM complete:  

Meyer Children’s Hospital Florence

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

National Institute of Children’s Diseases, Dept. of Paediatrics of Medical
Faculty Comenius University

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:   Yes

Odense Universitetshospital

 EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Oslo University Hospital HF

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Ospedale San Raffaele

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

Otto-von-Guericke Univeristy, Medical faculty – Central German Network for Rare disease 

EC Submission submitted:  Yes

Survey submitted: Pending 

CM complete: 

Pauls Stradins Clinical University Hospital

EC Submission submitted:  

Survey submitted: 

CM complete:  

Public Pediatric Teaching Hospital

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Radboud University Nijmegen Medical Center – including Amalia’s children
Hospital

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete:  Yes

Reference centre for rare diseases of calcium and phosphate-HEGP

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Sahlgrenska University Hospital

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Saint John Paul II Upper Silesian Child Health Centre, Public Clinical
Hospital no.6 of the Medical University of Silesia in Katowice

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Semmelweis University

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Spitalul Clinic de Psihiatrie “Prof. dr. Alexandru Obregia”

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Spitalul Clinic de Urgenta pentru Copii, Cluj-Napoca

EC Submission submitted:  Yes

Survey submitted: 

CM complete:  

Spitalul Clinic Judetean de Urgenta Cluj (Cluj County Emergency Clinical
Hospital)

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Tartu University Hospital

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

UMHAT “Sveta Marina” (Varna)

EC Submission submitted: Yes

Survey submitted:  Yes

CM complete:  Yes

Universitaetsklinikum Duesseldorf, AöR, Klinik für Allgemeine Pädiatrie, Neonatologie und Kinderkardiologie

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Universitätsklinikum Schleswig-Holstein

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

 Universitätsklinikum Tübingen

EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete:  Yes

Universitätsklinikum Ulm (Ulm University Medical Center)

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Hospital Aachen

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Hospital Centre Sestre Milosrdnice University Department of
Oncology & Nuclear Medicine Centre of Reference for thyroid disease

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Hospital Essen – Center for Rare Endocrine Diseases

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

University Hospital Florence

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Hospital Martin, Dept of Paediatrics of Jessenius Medical
Faculty Comenius University

EC Submission submitted:  

Survey submitted: 

CM complete:  

University Hospital Motol

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Hospital Würzburg

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Medical Center Groningen

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

University Medical Center Mainz

EC Submission submitted:  

Survey submitted: Yes

CM complete:  

University Medical Center Utrecht – Dept of Endocrine Oncology

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete:  Yes

University Medical Centre Ljubljana

EC Submission submitted:  Yes

Survey submitted:  Yes

CM complete:  Yes 

USHATE “ACAD IVAN Penchev”

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete: Yes

UZ Antwerpen

 EC Submission submitted:  Yes 

Survey submitted: Yes

CM complete: Yes

UZ Brussels

EC Submission submitted:  Yes 

Survey submitted:  Yes 

CM complete: Yes 

UZ Leuven

EC Submission submitted:  Yes

Survey submitted: Yes

CM complete:  Yes

Všeobecná fakultní nemocnice v Praze

EC Submission submitted:  

Survey submitted:  Yes

CM complete:  

Vuk Vrhovac University Clinic for Diabetes, Endocrinology and Metabolic
Diseases, Merkur University Hospital

EC Submission submitted:  

Survey submitted: 

CM complete: