All news items of Endo ERN

Read the Endo-ERN April newsletter now! This edition contains the date for the Endo-ERN General Assembly 2019, more information about our stand at ECE2018, a [...]

EuRRECa was present at the Rare Disease Registries Projects kick-off meeting in Luxembourg on 17th April. The meeting was hosted by CHAFEA at the DG [...]

The European Commission has released a video on how to get started with the Clinical Patient Management System (CPMS). CPMS is a secure web-based application [...]

Fibrous dysplasia of bone: a good example of multidisciplinary expert care bridging Endo-ERN with BOND. Thesis on fibrous dysplasia aims to address some of the [...]

Read the Endo-ERN March newsletter now! This edition contains an EU press release on Rare Diseases day and the 1 year anniversary of ERNs, announcement [...]

Endo-ERN will present a poster at the European Conference on Rare Diseases and Orphan products. The poster will be presented by our European Patient Advocacy [...]

Endo-ERN will be actively present at ECE2018! On Tuesday the 22nd of May a special Endo-ERN Symposium will take place from 9:45 until 10:45 and [...]

The European Commission has released a press release looking back on Rare Diseases day and celebrating the 1-year anniversary of ERNs Commissioner Vytenis Andriukaitis states [...]

The CPMS webinar schedule for April 2018. We encourage all Endo-ERN members to participate. The webinars scheduled are: 17 April 2018 @ 14:00 (CET) – [...]

Read the Endo-ERN February newsletter now! This past month we held our second General Assembly, the ERN coordinators wrote a position statement on the state [...]