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    Endocrine Conditions

    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

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    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
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    • MTG6Hypothalamic and Pituitary Conditions
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    • MTG8Thyroid
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/ Publications Overview / Publications Database

Endo-ERN Publications Database

RDD IssuesBack to Publications Overview

Filter list of publications

890 publication(s) found matching the search criteria

Patient-Derived Papillary Thyroid Cancer Organoids for Radioactive Iodine Refractory Screening


Author(s): Sondorp LH, Ogundipe VM, Groen AH, Kelder W, Kemper A, Links TP, Coppes RP, Kruijff S
Affiliated Institution / ERN: University Medical Center Groningen ;
Condition / Disease: Follicular thyroid carcinoma
Publication: Cancers v12.11 p3212 Year: 2020 ORPHAcode / other: ORPHA146
DOI: 10.3390/cancers12113212 Keywords: RAI therapy,cancer stem cells,papillary thyroid carcinoma,patient-derived tumor organoids,three-dimensional culture,treatment prediction,tumor organoids
MTG8

Advances in the Management of Medullary Thyroid Carcinoma: Focus on Peptide Receptor Radionuclide Therapy


Author(s): Grossrubatscher E, Fanciulli G, Pes L, Sesti F, Dolci C, de Cicco F, Colao A, Faggiano A
Affiliated Institution / ERN: Universitätsklinikum Magdeburg ;
Condition / Disease: Medullary thyroid carcinoma
Publication: Journal of Clinical Medicine v9.11 p3507 Year: 2020 ORPHAcode / other: ORPHA1332
DOI: 10.3390/jcm9113507 Keywords: medullary thyroid carcinoma,neuroendocrine neoplasm,peptide receptor radionuclide therapy,somatostatin analogues
MTG8

The Interplay Between Prolactin and Reproductive System: Focus on Uterine Pathophysiology


Author(s): Auriemma RS, Del Vecchio G, Scairati R, Pirchio R, Liccardi A, Verde N, de Angelis C, Menafra D, Pivonello C, Conforti A, Alviggi C, Pivonello R, Colao A
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Prolactinoma
Publication: Frontiers in Endocrinology v11 Year: 2020 ORPHAcode / other: ORPHA2965
DOI: 10.3389/fendo.2020.594370 Keywords: dopamine agonist therapy,endometriosis,fertility,prolactin,prolactinoma,uterine cancer,uterus (pathology)
MTG6

Predictors of recurrence of pheochromocytoma and paraganglioma: a multicenter study in Piedmont, Italy


Author(s): Mirko Parasiliti-Caprino, Barbara Lucatello, Chiara Lopez, Jacopo Burrello, Francesca Maletta, Marinella Mistrangelo, Enrica Migliore, Francesco Tassone, Antonio La Grotta, Anna Pia, Giuseppe Reimondo, Roberta Giordano, Giuseppe Giraudo, Alessandro Piovesan, Giovannino Ciccone, Dèsirèe Deandreis, Paolo Limone, Fabio Orlandi, Giorgio Borretta, Marco Volante, Paolo Mulatero, Mauro Papotti, Gianluca Aimaretti, Massimo Terzolo, Mario Morino, Barbara Pasini, Franco Veglio, Ezio Ghigo, Emanuela Arvat & Mauro Maccario
Affiliated Institution / ERN:
Condition / Disease: Pheochromocytoma
Publication: Hypertension Research Volume 43, pages 500–510(2020) Year: 2020 ORPHAcode / other: ORPHA573163
DOI: 10.1038/s41440-019-0339-y Keywords: PPGL; pheochromocytomas; paragangliomas; predictors;
MTG1 MTG4

Cancer Surveillance Guideline for individuals with PTEN hamartoma tumour syndrome


Author(s): Tischkowitz M, Colas C, Pouwels S, Hoogerbrugge N, Bisseling T, Bubien V, Caux F, Chabbert-Buffet N, Colas C, Da Mota Gomes S, Gotthardt M, Hoogerbrugge N, Kets M, Lachlan KL, Links TP, Longy M, Mann R, Pouwels S, Kool LS, Semple RK, Stock I, Tischkowitz M, Vos J, Hoogerbrugge N, Ligtenberg M, Oostenbrink R, Sijmons R, Evans G, Woodward E, Tischkowitz M, Maher E, Ferner RE, Aretz S, Spier I, Steinke-Lange V, Holinski-Feder E, Schröck E, Frebourg T, Houdayer C, Colas C, Wolkenstein P, Bours V, Legius E, Poppe B, Claes K, de Putter R, Guillermo IB, Capella G, Vidal JB, Lázaro C, Balmaña J, Hernandez HS, Oliveira C, Teixeira M, Bajalica-Lagercrantz S, Tham E, Lubinski J, Ertmanska K, Melegh B, Krajc M, Blatnik A, Peltonen S, Hietala M
Affiliated Institution / ERN: ERN BOND ; ERN BOND ; ERN BOND ;
Condition / Disease: PTEN hamartoma tumour syndrome
Publication: European Journal of Human Genetics v28.10 p1387-1393 Year: 2020 ORPHAcode / other: ORPHA306498
DOI: 10.1038/s41431-020-0651-7 Keywords:

Permanent postoperative hypoparathyroidism: an analysis of prevalence and predictive factors for adequacy of control in a cohort of 260 patients


Author(s): Díez JJ, Anda E, Sastre J, Pérez Corral B, Álvarez-Escolá C, Manjón L, Paja M, Sambo M, Santiago Fernández P, Blanco Carrera C, Galofré JC, Navarro E, Zafón C, Sanz E, Oleaga A, Bandrés O, Donnay S, Megía A, Picallo M, Sánchez Ragnarsson C, Baena-Nieto G, Fernández-García JC, Lecumberri B, Sahún de la Vega M, Romero-Lluch AR, Iglesias P
Affiliated Institution / ERN:
Condition / Disease: Hypoparathyroidism
Publication: Gland Surgery v9.5 p1380-1388 Year: 2020 ORPHAcode / other: 5A50
DOI: 10.21037/gs-20-288 Keywords: Permanent hypoparathyroidism,adequacy of control,parathyroid hormone (PTH),thyroidectomy
MTG8

New national recommendations for the treatment of pediatric differentiated thyroid carcinoma in the Netherlands


Author(s): Lebbink CA, Dekker BL, Bocca G, Braat AJAT, Derikx JPM, Dierselhuis MP, de Keizer B, Kruijff S, Kwast ABG, van Nederveen FH, Nieveen van Dijkum EJM, Nievelstein RAJ, Peeters RP, Terwisscha van Scheltinga CEJ, Tissing WJE, van der Tuin K, Vriens MR, Zsiros J, van Trotsenburg ASP, Links TP, van Santen HM
Affiliated Institution / ERN: University Hospital Florence ;
Condition / Disease: Follicular thyroid carcinoma
Publication: European Journal of Endocrinology v183.4 pP11-P18 Year: 2020 ORPHAcode / other: ORPHA146
DOI: 10.1530/EJE-20-0191 Keywords:
MTG8

The IGF2 methylation score for adrenocortical cancer: an ENSAT validation study


Author(s): Creemers SG, Feelders RA, Valdes N, Ronchi CL, Volante M, van Hemel BM, Luconi M, Ettaieb MHT, Mannelli M, Chiara MD, Fassnacht M, Papotti M, Kerstens MN, Nesi G, Haak HR, van Kemenade FJ, Hofland LJ
Affiliated Institution / ERN: Erasmus MC: University Medical Center Rotterdam ; University Hospital Würzburg ; AO City of Health and Science - Turin ; University Medical Center Groningen ; University Hospital Florence ;
Condition / Disease: Adrenocortical carcinoma
Publication: Endocrine-Related Cancer v27.10 p541-550 Year: 2020 ORPHAcode / other: ORPHA1501
DOI: 10.1530/ERC-19-0378 Keywords: DNA methylation,IGF2 methylation score,adrenocortical carcinoma,biomarker
MTG1

Expression of programmed death-ligand 1 (PD-L1) in human pituitary neuroendocrine tumor


Author(s): Suteau V, Collin A, Menei P, Rodien P, Rousselet M, Briet C
Affiliated Institution / ERN:
Condition / Disease: Pituitary adenoma
Publication: Cancer Immunology, Immunotherapy v69.10 p2053-2061 Year: 2020 ORPHAcode / other: ORPHA99408
DOI: 10.1007/s00262-020-02611-x Keywords: Clone 22C3,Immunohistochemistry,Immunotherapy,PD-L1,Pituitary neuroendocrine tumor
MTG6

Ki67 in endocrine neoplasms: to count or not to count, this is the question! A systematic review from the English language literature


Author(s): Guadagno E, D’Avella E, Cappabianca P, Colao A, Del Basso De Caro M
Affiliated Institution / ERN: ERN BOND ;
Condition / Disease: Neuroendocrine neoplasm
Publication: Journal of Endocrinological Investigation v43.10 p1429-1445 Year: 2020 ORPHAcode / other: ORPHA877
DOI: 10.1007/s40618-020-01275-9 Keywords: Endocrine,Ki-67,Ki67,Prognosis,Proliferation

Germinal defects of SDHx genes in patients with isolated pituitary adenoma


Author(s): Mougel G, Lagarde A, Albarel F, Essamet W, Luigi P, Mouly C, Vialon M, Cuny T, Castinetti F, Saveanu A, Brue T, Barlier A, Romanet P
Affiliated Institution / ERN:
Condition / Disease: Pituitary adenoma
Publication: European Journal of Endocrinology v183.4 p369-379 Year: 2020 ORPHAcode / other: ORPHA99408
DOI: 10.1530/EJE-20-0054 Keywords:
MTG6

Discordant biological parameters of remission in acromegaly do not increase the risk of hypertension or diabetes: a study with the Liege Acromegaly Survey database


Author(s): Amodru V, Petrossians P, Colao A, Delemer B, Maione L, Neggers S, Decoudier B, Kamenicky P, Castinetti F, Hana V, Pivonello R, Carvalho D, Brue T, Beckers A, Chanson P, Cuny T
Affiliated Institution / ERN:
Condition / Disease: Acromegaly
Publication: Endocrine v70.1 p134-142 Year: 2020 ORPHAcode / other: ORPHA963
DOI: 10.1007/s12020-020-02387-1 Keywords: Acromegaly,Diabetes,Discordance,GH,Hypertension,IGF-1
MTG6

Surgical Complications and Referral Patterns in 567 Patients with Differentiated Thyroid Cancer in the Northern Region of the Netherlands: A Population-Based Study Towards Clinical Management Implementation


Author(s): van Dijk D, van Dijk BAC, Weistra A, Links TP, Plukker JTM
Affiliated Institution / ERN: University Hospital Essen ;
Condition / Disease: Follicular thyroid carcinoma
Publication: Annals of Surgical Oncology v27.10 p3872-3881 Year: 2020 ORPHAcode / other: ORPHA146
DOI: 10.1245/s10434-020-08470-1 Keywords:
MTG8

HDAC Inhibition Induces PD-L1 Expression in a Novel Anaplastic Thyroid Cancer Cell Line


Author(s): Hegedűs L, Rittler D, Garay T, Stockhammer P, Kovács I, Döme B, Theurer S, Hager T, Herold T, Kalbourtzis S, Bankfalvi A, Schmid KW, Führer D, Aigner C, Hegedűs B
Affiliated Institution / ERN:
Condition / Disease: Anaplastic Thyroid Carcinoma
Publication: Pathology & Oncology Research v26.4 p2523-2535 Year: 2020 ORPHAcode / other: ORPHA142
DOI: 10.1007/s12253-020-00834-y Keywords: Anaplastic thyroid cancer,BRAF mutation,HDAC inhibition,Pleural effusion,TERT promoter mutation
MTG8

Global longitudinal strain as a marker for systolic function in patients with pheochromocytomas


Author(s): Elenkova A, Shabani R, Kinova E, Vasilev V, Goudev A, Zacharieva S
Affiliated Institution / ERN:
Condition / Disease: Pheochromocytoma
Publication: Endocrine-Related Cancer v27.10 p561-570 Year: 2020 ORPHAcode / other: ORPHA573163
DOI: 10.1530/ERC-20-0137 Keywords: catecholamine-induced cardiomyopathy,global longitudinal strain,pheochromocytoma,strain echocardiography
MTG1 MTG4

What microRNAs could tell us about the human X chromosome


Author(s): Di Palo A, Siniscalchi C, Salerno M, Russo A, Gravholt CH, Potenza N
Affiliated Institution / ERN:
Condition / Disease: Turner's Syndrome; Klinefelter Syndrome;
Publication: Cellular and Molecular Life Sciences v77.20 p4069-4080 Year: 2020 ORPHAcode / other: ORPHA881; LD50.3;
DOI: 10.1007/s00018-020-03526-7 Keywords: Klinefelter syndrome,Turner syndrome,X chromosome,microRNA
MTG7

GnRH stimulation testing and serum inhibin B in males: insufficient specificity for discriminating between congenital hypogonadotropic hypogonadism from constitutional delay of growth and puberty


Author(s): Mosbah H, Bouvattier C, Maione L, Trabado S, De Filippo G, Cartes A, Donzeau A, Chanson P, Brailly-Tabard S, Dwyer AA, Coutant R, Young J
Affiliated Institution / ERN:
Condition / Disease: Congenital hypogonadotropic hypogonadism
Publication: Human Reproduction v35.10 p2312-2322 Year: 2020 ORPHAcode / other: ORPHA174590
DOI: 10.1093/humrep/deaa185 Keywords: GnRH,Kallmann syndrome,delayed puberty,gonadotropins,hypogonadism,inhibin B
MTG6

Neonatal Diabetes Mellitus


Author(s): Beltrand J, Busiah K, Vaivre-Douret L, Fauret AL, Berdugo M, Cavé H, Polak M
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Cochin ;
Condition / Disease: Neonatal Diabetes Mellitus
Publication: Frontiers in Pediatrics v8 Year: 2020 ORPHAcode / other: ORPHA224
DOI: 10.3389/fped.2020.540718 Keywords: ABCC8,KCNJ11 (Kir6.2),associated malformations,chromosome 6q24 abnormality,neonatal diabetes mellitus,neuropsychological disorder,sulfonylurea receptor (SUR1)
MTG3

Novel variant in the CNNM2 gene associated with dominant hypomagnesemia


Author(s): García-Castaño A, Madariaga L, Antón-Gamero M, Mejia N, Ponce J, Gómez-Conde S, Pérez de Nanclares G, De la Hoz AB, Martínez R, Saso L, Martínez de LaPiscina I, Urrutia I, Velasco O, Aguayo A, Castaño L, Gaztambide S
Affiliated Institution / ERN: Hospital Universitario Cruces ; ERN BOND ;
Condition / Disease: Hypomagnesemia
Publication: PLOS ONE v15.9 pe0239965 Year: 2020 ORPHAcode / other: ORPHA93603
DOI: 10.1371/journal.pone.0239965 Keywords:

Real-World Estimates of Adrenal Insufficiency–Related Adverse Events in Children With Congenital Adrenal Hyperplasia


Author(s): Salma R Ali, Jillian Bryce, Houra Haghpanahan, James D Lewsey, Li En Tan, Navoda Atapattu, Niels H Birkebaek, Oliver Blankenstein, Uta Neumann, Antonio Balsamo, Rita Ortolano, Walter Bonfig, Hedi L Claahsen-van der Grinten, Martine Cools, Eduardo Correa Costa, Feyza Darendeliler, Sukran Poyrazoglu, Heba Elsedfy, Martijn J J Finken, Christa E Fluck, Evelien Gevers, Márta Korbonits, Guilherme Guaragna-Filho, Tulay Guran, Ayla Guven, Sabine E Hannema, Claire Higham, Ieuan A Hughes, Rieko Tadokoro-Cuccaro, Ajay Thankamony, Violeta Iotova, Nils P Krone, Ruth Krone, Corina Lichiardopol, Andrea Luczay, Berenice B Mendonca, Tania A S S Bachega, Mirela C Miranda, Tatjana Milenkovic, Klaus Mohnike, Anna Nordenstrom, Silvia Einaudi, Hetty van der Kamp, Ana Vieites, Liat de Vries, Richard J M Ross, S Faisal Ahmed
Affiliated Institution / ERN:
Condition / Disease: Congenital adrenal hyperpasia
Publication: The Journal of Clinical Endocrinology & Metabolism 2020 Sep 29;dgaa694. doi: 10.1210/clinem/dgaa694 Year: 2020 ORPHAcode / other: ORPHA418
DOI: 10.1210/clinem/dgaa694 Keywords: 21-hydroxylase deficiency; adrenal crisis; adrenal insufficiency; congenital adrenal hyperplasia; registry;
MTG1

Blood sampling for metanephrines comparing venipuncture vs. indwelling intravenous cannula in healthy subjects


Author(s): Eijkelenkamp K, van Geel EH, Kerstens MN, van Faassen M, Kema IP, Links TP, van der Horst-Schrivers AN
Affiliated Institution / ERN: University Hospital Essen ; Ulm University Medical Center ;
Condition / Disease: Pheochromocytoma and paraganglioma
Publication: Clinical Chemistry and Laboratory Medicine (CCLM) v58.10 p1681-1686 Year: 2020 ORPHAcode / other: ORPHA573163
DOI: 10.1515/cclm-2020-0022 Keywords: blood sampling condition,paraganglioma,pheochromocytoma,plasma-free metanephrines

Homozygous p.R31H GNRH1 mutation and normosmic congenital hypogonadotropic hypogonadism in a patient and self-limited delayed puberty in his relatives


Author(s): Brachet C, Gernay C, Boros E, Soblet J, Vilain C, Heinrichs C
Affiliated Institution / ERN:
Condition / Disease: Congenital hypogonadotropic hypogonadism
Publication: Journal of Pediatric Endocrinology and Metabolism v33.9 p1237-1240 Year: 2020 ORPHAcode / other: ORPHA174590
DOI: 10.1515/jpem-2020-0207 Keywords: CHH,GHRH1,congenital hypogonadism,pubertal delay
MTG6

Development and Internal Validation of a Multivariable Prediction Model for Adrenocortical-Carcinoma-Specific Mortality


Author(s): Ettaieb MHT, van Kuijk SMJ, de Wit-Pastoors A, Feelders RA, Corssmit EPM, Eekhoff EMW, van der Valk P, Timmers HJLM, Kerstens MN, Klümpen H, van Leeuwaarde RS, Havekes B, Haak HR
Affiliated Institution / ERN: Máxima Medisch Centrum Veldhoven ; Maastricht University Medical Center+ ; Leiden University Medical Center ; Amsterdam UMC ; Radboud University Medical Centre Nijmegen ; University Medical Center Groningen ; University Medical Center Utrecht ; Erasmus MC: University Medical Center Rotterdam ;
Condition / Disease: Adrenocortical carcinoma
Publication: Cancers v12.9 p2720 Year: 2020 ORPHAcode / other: ORPHA1501
DOI: 10.3390/cancers12092720 Keywords: adrenocortical carcinoma,mortality,prediction
MTG1

Consensus clinical management guidelines for Alström syndrome


Author(s): Natascia Tahani, Pietro Maffei, Hélène Dollfus, Richard Paisey, Diana Valverde, Gabriella Milan, Joan C Han, Francesca Favaretto, Shyam C Madathil, Charlotte Dawson, Matthew J Armstrong, Adrian T Warfield, Selma Düzenli, Clair A Francomano, Meral Gunay-Aygun, Francesca Dassie, Vincent Marion, Marina Valenti, Kerry Leeson-Beevers, Ann Chivers, Richard Steeds, Timothy Barrett & Tarekegn Geberhiwot
Affiliated Institution / ERN:
Condition / Disease:
Publication: Orphanet Journal of Rare Diseases 15, Article number: 253 (2020) Year: 2020 ORPHAcode / other:
DOI: 10.1186/s13023-020-01468-8 Keywords:

Surgery for multiple endocrine neoplasia type 1-related insulinoma: long-term outcomes in a large international cohort


Author(s): Beek DJ, Nell S, Verkooijen HM, Borel Rinkes IHM, Valk GD, Vriens MR, Goudet P, Vella A, Donegan D, Bartsch DK, Manoharan J, Perrier ND, Christakis I, Brandi ML, Zarnegar R, Postma EL, Kebebew E, Nockel P, Brunaud L, Pasternak JD, Kluijfhout WP, Sturgeon C, Giri S, Bonsing BA, Eijck CH, Goor H, Kleine RHJ, Dijkum EJN, Dejong CHC
Affiliated Institution / ERN:
Condition / Disease: Multiple endocrine neoplasia type 1
Publication: British Journal of Surgery v107.11 p1489-1499 Year: 2020 ORPHAcode / other: ORPHA652
DOI: 10.1002/bjs.11632 Keywords:
MTG4

Clinical benefits of sex steroids given as a priming prior to GH provocative test or as a growth-promoting therapy in peripubertal growth delays: Results of a retrospective study among ENDO-ERN centres


Author(s): Elena Galazzi, Nicola Improda, Manuela Cerbone, Davide Soranna, Mirella Moro, Letizia Maria Fatti, Antonella Zambon, Marco Bonomi, Mariacarolina Salerno, Mehul Dattani, Luca Persani
Affiliated Institution / ERN: IRCCS Auxologico Italian Institute - Milan ; AOU Federico II - Naples ;
Condition / Disease: Constitutional delay of growth
Publication: Wiley online library Doi 10.1111 cen.14337 Year: 2020 ORPHAcode / other: 5A91
DOI: 10.1111/cen.14337 Keywords: constitutional delay of growth and puberty; final height; idiopathic growth hormone deficiency; puberty; sex steroid priming; short stature;
MTG5 MTG7

Pancreatic Neuroendocrine Neoplasms: Does Sex Matter?


Author(s): Muscogiuri G, Barrea L, Feola T, Gallo M, Messina E, Venneri MA, Faggiano A, Colao A
Affiliated Institution / ERN:
Condition / Disease:
Publication: Trends in Endocrinology & Metabolism v31.9 p631-641 Year: 2020 ORPHAcode / other:
DOI: 10.1016/j.tem.2020.02.010 Keywords: epidemiology,pancreatic neuroendocrine neoplasms,sex,sex difference

Psychosexual Outcome, Sexual Function, and Long-Term Satisfaction of Adolescent and Young Adult Men After Childhood Hypospadias Repair


Author(s): Tack LJ, Springer A, Riedl S, Tonnhofer U, Weninger J, Hiess M, Van Laecke E, Hoebeke P, Spinoit A, Cools M, Van Hoecke E
Affiliated Institution / ERN:
Condition / Disease: Other
Publication: The Journal of Sexual Medicine v17.9 p1665-1675 Year: 2020 ORPHAcode / other: ORPHA98085
DOI: 10.1016/j.jsxm.2020.04.002 Keywords: Erectile Function,Hypospadias,Hypospadias Repair,Psychosexual Outcome,Sexual Function
MTG7

Hyperprolactinemia in Acromegaly is Related to Prolactin Secretion by Somatolactotroph Tumours


Author(s): Van Laethem D, Michotte A, Cools W, Velkeniers B, Unuane D, Andreescu CE, Bravenboer B
Affiliated Institution / ERN:
Condition / Disease: Acromegaly
Publication: Hormone and Metabolic Research v52.09 p647-653 Year: 2020 ORPHAcode / other: ORPHA963
DOI: 10.1055/a-1207-1132 Keywords:
MTG6

Multivariable Prediction Model for Biochemical Response to First-Generation Somatostatin Receptor Ligands in Acromegaly


Author(s): Coopmans EC, Korevaar TIM, van Meyel SWF, Daly AF, Chanson P, Brue T, Delemer B, Hána V, Colao A, Carvalho D, Jaffrain-Rea M, Stalla GK, Fajardo-Montañana C, Beckers A, van der Lely AJ, Petrossians P, Neggers SJCMM
Affiliated Institution / ERN:
Condition / Disease: Central congenital hypothyroidism
Publication: The Journal of Clinical Endocrinology & Metabolism v105.9 p2964-2974 Year: 2020 ORPHAcode / other: ORPHA226298
DOI: 10.1210/clinem/dgaa387 Keywords: acromegaly,biochemical response,first-generation somatostatin receptor ligands
MTG8
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E-services

Endo-ERN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the Endo-ERN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The Endo-ERN newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. Endo-ERN may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. 
The data collected through this tracking is generated and stored by Endo-ERN and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

For any questions regarding our privacy policy, please contact the Endo-ERN coordinating office.

You have the right to be forgotten and removed completely from the Endo-ERN contact database. To request this, please contact the Endo-ERN coordinating office.

Endo-ERN Coordinating Center, Meibergdreef 9, 1105 AZ  AMSTERDAM. The Netherlands

 info@endo-ern.eu
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