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    Endocrine Conditions

    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

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    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
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    • MTG5Growth & Genetic Obesity Syndromes
    • MTG6Hypothalamic and Pituitary Conditions
    • MTG7Sex Development & Maturation
    • MTG8Thyroid
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/ Publications Overview / Publications Database

Endo-ERN Publications Database

RDD IssuesBack to Publications Overview

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890 publication(s) found matching the search criteria

Multicenter, Observational Study of Lanreotide Autogel for the Treatment of Patients with Neuroendocrine Tumors in Routine Clinical Practice in Germany and Austria


Author(s): Rinke A, Maintz C, Müller L, Weber MM, Lahner H, Pavel M, Saeger W, Houchard A, Ungewiss H, Petersenn S
Affiliated Institution / ERN:
Condition / Disease:
Publication: Experimental and Clinical Endocrinology & Diabetes v129.07 p500-509 Year: 2021 ORPHAcode / other:
DOI: 10.1055/a-1342-2755 Keywords:

Immunogenicity and reactogenicity of BNT162b2 booster in ChAdOx1-S-primed participants (CombiVacS): a multicentre, open-label, randomised, controlled, phase 2 trial


Author(s): Borobia AM, Carcas AJ, Pérez-Olmeda M, Castaño L, Bertran MJ, García-Pérez J, Campins M, Portolés A, González-Pérez M, García Morales MT, Arana-Arri E, Aldea M, Díez-Fuertes F, Fuentes I, Ascaso A, Lora D, Imaz-Ayo N, Barón-Mira LE, Agustí A, Pérez-Ingidua C, Gómez de la Cámara A, Arribas JR, Ochando J, Alcamí J, Belda-Iniesta C, Frías J, Martínez de Soto L, Rodríguez Mariblanca A, Díaz García L, Ramírez García E, Seco Meseguer E, Stewart Balbás SM, Marín Candón A, García García I, Urroz Elizalde M, Monserrat Villatoro J, de la Rosa P, Sanz García M, López Crespo C, Mauleón Martínez V, de Madariaga Castell R, Vitón Vara L, García Rodríguez J, Buño A, López Granados E, Cámara C, Rey Cuevas E, Ayllon García P, Jiménez González M, Hernández Rubio V, Moraga Alapont P, Sánchez A, Prieto R, Llorente Gómez S, Miragall Roig C, Aparicio Marlasca M, de la Calle F, Arsuaga M, Duque B, Meijide S, García de Vicuña A, Santorcuato A, Expósito I, de Benito S, Andia J, Castillo C, Irurzun E, Camino J, Temprano M, Goikoetxea J, Bustinza A, Larrea M, Gallego M, García-Vázquez D, de la Hoz AB, Pérez-Nanclares G, Pérez-Guzmán E, Idoyaga E, Lamela A, Oteo J, Castillo de la Osa M, Hernández Gutiérrez L, Andrés Galván ME, Calonge E, Andrés Galván ME, Bermejo M, de la Torre-Tarazona EH, Cascajero A, Fedele G, Perea C, Cervera I, Bodega-Mayor I, Montes-Casado M, Portolés P, Baranda J, Granés L, Lazaar S, Herranz S, Mellado ME, Tortajada M, Malet M, Quesada S, Vilella A, Llupià A, Olivé V, Trilla A, Gómez B, González E, Romero S, Gámez FJ, Casals C, Burunat L, Castelló JJ, Fernández P, Bedini JL, Vila J, Aguilar C, Altadill C, Armadans L, Borras-Bermejo B, Calonge J, Camacho L, Feliu A, Gili G, Llorente C, Martínez-Gómez X, Otero-Romero S, Palacio E, Parés O, Pinós L, Plaza A, Riera-Arnau J, Rodrigo-Pendás JA, Sans C, Santos J, Torres G, Torrens M, Uriona S, Ballarin Alins E, Pérez Esquirol E, Vendrell Bosch L, Laredo Velasco L, Uribe López D, González Rojano E, Sánchez-Craviotto M, Rivas Paterna AB, Hernán-Gómez TI, Rodríguez Galán N, Gil Marín JA, Álvarez-Morales V, Navalpotro AB, Jiménez-Santamaría MD, Cardós MC, Hermoso E, García-Arenillas M, Pérez Macías N, Domingo Fernández A, López Picado A, Quiñones JM, Deidda N, García-Franco A, Torvisco JM
Affiliated Institution / ERN:
Condition / Disease:
Publication: The Lancet v398.10295 p121-130 Year: 2021 ORPHAcode / other:
DOI: 10.1016/S0140-6736(21)01420-3 Keywords:

Complications after medullary thyroid carcinoma surgery: multicentre study of the SQRTPA and EUROCRINE® databases


Author(s): van Beek D-, Almquist M, Bergenfelz AO, Musholt TJ, Nordenström E, Almquist M, Barczynski M, Brunaud L, Clerici T, Hansen MH, Iacobone M, Makay Ã, Palazzo FF, Muñoz-Pérez N, Raffaelli M, Riss P, van Slycke S, Vriens MR
Affiliated Institution / ERN: University Medical Center Utrecht ; University Medical Center Mainz ;
Condition / Disease: Medullary thyroid carcinoma
Publication: British Journal of Surgery v108.6 p691-701 Year: 2021 ORPHAcode / other: ORPHA1332
DOI: 10.1093/bjs/znaa195 Keywords:
MTG8

Physical Activity in Patients with Prader-Willi Syndrome—A Systematic Review of Observational and Interventional Studies


Author(s): Bellicha A, Coupaye M, Mosbah H, Tauber M, Oppert J, Poitou C
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpétrière ; Assistance Publique-Hôpitaux de Paris, Hôpital Cochin ; CHU de Toulouse ;
Condition / Disease: Prader-Willi syndrome
Publication: Journal of Clinical Medicine v10.11 p2528 Year: 2021 ORPHAcode / other: ORPHA739
DOI: 10.3390/jcm10112528 Keywords: Prader-Willi syndrome,implementation,physical activity,sedentary time,syndromic obesities,systematic review
MTG5

Cushing Disease with Glucocorticoid-induced Positive Feedback—A New Subtype of Pituitary Corticotropinomas?


Author(s): Tóth M
Affiliated Institution / ERN: Semmelweis University ;
Condition / Disease: Cushing disease
Publication: Journal of the Endocrine Society v5.6 Year: 2021 ORPHAcode / other: ORPHA96253
DOI: 10.1210/jendso/bvab079 Keywords: Cushing disease,glucocorticoid-induced positive feedback
MTG6

Heart and Turner syndrome


Author(s): Donadille B, Christin-Maitre S
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Cochin ;
Condition / Disease: 45,X
Publication: Annales d'Endocrinologie v82.3-4 p135-140 Year: 2021 ORPHAcode / other: ORPHA881
DOI: 10.1016/j.ando.2020.12.004 Keywords: Aortic coarctation,Aortic dilatation,Aortic dissection,Bicuspid aortic valve,Coarctation aortique,Dilatation aortique,Dissection aortique,Grossesse,Heart disease,Maladie cardiaque,Maladie rare,Pregnancy,Rare disease,Syndrome de Turner,Turner syndrome,Valve aortique bicuspide
MTG7

Timely diagnosis of multiple endocrine neoplasia 2B by identification of intestinal ganglioneuromatosis: a case series


Author(s): van den Broek MFM, Rijks EBG, Nikkels PGJ, Wolters VM, van Es RJJ, van Santen HM, van Nesselrooij BPM, Vriens MR, van Leeuwaarde RS, Valk GD, Verrijn Stuart AA
Affiliated Institution / ERN:
Condition / Disease: Multiple endocrine neoplasia type 2B
Publication: Endocrine v72.3 p905-914 Year: 2021 ORPHAcode / other: ORPHA247709
DOI: 10.1007/s12020-021-02607-2 Keywords: Intestinal ganglioneuromatosis (IGN),Medullary thyroid carcinoma (MTC),Multiple endocrine neoplasia 2B (MEN2B),Neuromas/neurofibromas,Rectal biopsy
MTG4

A clinical approach to parasellar lesions in the transition age


Author(s): Sbardella E, Puliani G, Feola T, Pofi R, Pirchio R, Sesti F, Verdecchia F, Gianfrilli D, Moffat D, Isidori AM, Grossman AB
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Parasellar lesions
Publication: Journal of Neuroendocrinology v33.6 Year: 2021 ORPHAcode / other: ORPHA99408, ORPHA54595, ORPHA2113, ORPHA178, ORPHA389
DOI: 10.1111/jne.12995 Keywords: adolescence,lesions,parasellar,pituitary,sellar,transition
MTG6

Cardiac complications of thyroid hormone resistance syndromes


Author(s): Illouz F, Briet C, Mirebeau-Prunier D, Bouhours-Nouet N, Coutant R, Sibilia P, Rodien P
Affiliated Institution / ERN:
Condition / Disease: Thyroid hormone resistance syndromes
Publication: Annales d'Endocrinologie v82.3-4 p167-169 Year: 2021 ORPHAcode / other: ORPHA596426
DOI: 10.1016/j.ando.2020.03.008 Keywords: Atrial fibrillation,Cœur,Heart,Récepteurs aux hormones thyroïdiennes,Résistance aux hormones thyroïdiennes,Thyroid hormone receptor,Thyroid hormone resistance,fibrillation auriculaire
MTG8

Recovery of parathyroid function in patients with thyroid cancer treated by total thyroidectomy: An analysis of 685 patients with hypoparathyroidism at discharge of surgery


Author(s): Díez JJ, Anda E, Sastre J, Pérez-Corral B, Álvarez-Escolá C, Manjón L, Paja M, Sambo M, Santiago-Fernández P, Blanco-Carrera C, Galofré JC, Navarro E, Zafón C, Sanz E, Oleaga A, Bandrés O, Donnay S, Megía A, Picallo M, Sánchez-Ragnarsson C, Baena-Nieto G, Fernández-García JC, Lecumberri B, Vega MSdl, Romero-Lluch AR, Iglesias P
Affiliated Institution / ERN:
Condition / Disease: Hypoparathyroidism; thyroid carcinoma;
Publication: Endocrinología, Diabetes y Nutrición v68.6 p398-407 Year: 2021 ORPHAcode / other: ORPHA181405; ORPHA146;
DOI: 10.1016/j.endinu.2020.06.004 Keywords: Permanent hypoparathyroidism; Thyroid cancer; RecoveryThyroidectomy;
MTG2 MTG8

Alteraciones tiroideas asociadas con los inhibidores de los puntos de control inmunitario


Author(s): Fidilio E, Navarro-González E, Romero-Lluch AR, Iglesias P, Diez Gómez JJ, Anda Apiñániz E, Santos Mazo E, Zafón C
Affiliated Institution / ERN:
Condition / Disease: Thyroid dysfunction
Publication: Endocrinología, Diabetes y Nutrición v68.6 p408-415 Year: 2021 ORPHAcode / other:
DOI: 10.1016/j.endinu.2020.04.007 Keywords: Immune checkpoint inhibitors; Thyroid dysfunctionI; pilimumab, Nivolumab; Pembrolizumab; Hypothyroidism; Hyperthyroidism;
MTG8

The Value of Pre-Ablative I-131 Scan for Clinical Management in Patients With Differentiated Thyroid Carcinoma


Author(s): van der Boom T, Zandee WT, Dekkers CCJ, van der Horst-Schrivers ANA, Jansen L, Kruijff S, Brouwers AH, Links TP
Affiliated Institution / ERN: University Medical Center Groningen ; Maastricht University Medical Center+ ;
Condition / Disease: Follicular thyroid carcinoma
Publication: Frontiers in Endocrinology v12 Year: 2021 ORPHAcode / other: ORPHA146
DOI: 10.3389/fendo.2021.655676 Keywords: clinical management,differentiated thyroid carcinoma,postoperative I-131 diagnostic scan,thyroid cancer,uptake
MTG8

Using QR Code for Uniform Representation of Content in Cross-Border Exchange of ePrescriptions in the EU


Author(s): Krastev E, Kovachev P, Tcharaktchiev D, Abanos S
Affiliated Institution / ERN:
Condition / Disease:
Publication: Studies in Health Technology and Informatics doi:10.3233/shti210259 Year: 2021 ORPHAcode / other:
DOI: 10.3233/SHTI210259 Keywords: QR code,XML,business process model and notation,cross-border exchange,ePrescription,health informatics,inversion of control

Adults’ Adherence to Growth Hormone Replacement in Relation to Medication-Related Beliefs, Coping and Quality of Life – An Exploratory Analysis


Author(s): Siegel S, Unger N, Streetz-van der Werf C, Karges W, Schilbach K, Schröder B, Szybowicz J, Sauerwald J, Zopf K, Grzywotz A, Bidlingmaier M, Kirstein C, Sommer H, Strasburger CJ, Kreitschmann-Andermahr I
Affiliated Institution / ERN: University Hospital Essen ; University Hospital Aachen ; Klinikum der Universität München ; Charité Universitätsmedizin Berlin ;
Condition / Disease: Acquired and non-acquired hypopituitarism
Publication: Frontiers in Endocrinology v12 Year: 2021 ORPHAcode / other: ORPHA95488, ORPHA95502, ORPHA631
DOI: 10.3389/fendo.2021.680964 Keywords: adherence,adult growth hormone deficiency,beliefs about medications,coping,quality of life
MTG6

Thyroid Microcarcinoma in Pediatric Population in Romania


Author(s): Andreea-Ioana Stefan, Andra Piciu, Maria Margareta Cosnarovici, Monica Dragomir, Romana Netea-Maier, Doina Piciu
Affiliated Institution / ERN: Radboud University Medical Centre Nijmegen ; Institute of Oncology “Prof dr. Ion Chiricuta” CLUJ NAPOCA ;
Condition / Disease: Thyroid carcinoma
Publication: MDPI Children 2021, 8(5), 422; Year: 2021 ORPHAcode / other: ORPHA146
DOI: 10.3390/children8050422 Keywords: microcarcinoma; pediatric; thyroid cancer;
MTG8

Familial Short Stature—A Novel Phenotype of Growth Plate Collagenopathies


Author(s): Plachy L, Dusatkova P, Maratova K, Petruzelkova L, Elblova L, Kolouskova S, Snajderova M, Obermannova B, Zemkova D, Sumnik Z, Lebl J, Pruhova S
Affiliated Institution / ERN: ERN BOND ; University Hospital Motol ;
Condition / Disease: Growth Plate Collagenopathies
Publication: The Journal of Clinical Endocrinology & Metabolism v106.6 p1742-1749 Year: 2021 ORPHAcode / other:
DOI: 10.1210/clinem/dgab084 Keywords: collagenopathies,familial short stature,growth hormone treatment,growth plate,next-generation sequencing
MTG5

Complete Remission of Advanced Adrenocortical Cancer Following Mitotane Monotherapy: A Case Report and Literature Review of Predictive Markers


Author(s): Tőke J, Jakab Z, Stark J, Huszty G, Reismann P, Tóth M
Affiliated Institution / ERN: Semmelweis University ;
Condition / Disease: Adrenocortical carcinoma
Publication: Frontiers in Oncology v11 Year: 2021 ORPHAcode / other: ORPHA1501
DOI: 10.3389/fonc.2021.680853 Keywords: adrenocortical cancer,complete remission,mitotane,monotherapy,predictive markers
MTG1

Current Status of Newborn Screening in Southeastern Europe


Author(s): Koracin V, Mlinaric M, Baric I, Brincat I, Djordjevic M, Drole Torkar A, Fumic K, Kocova M, Milenkovic T, Moldovanu F, Mulliqi Kotori V, Nanu MI, Remec ZI, Repic Lampret B, Platis D, Savov A, Samardzic M, Suzic B, Szatmari I, Toromanovic A, Zerjav Tansek M, Battelino T, Groselj U
Affiliated Institution / ERN: ERN BOND ;
Condition / Disease: Newborn screening
Publication: Frontiers in Pediatrics v9 Year: 2021 ORPHAcode / other: ORPHA442, ORPHA418
DOI: 10.3389/fped.2021.648939 Keywords: NBS,dried blood sample,expanded NBS program,neonatal screening,newborn screening,southeastern Europe,survey
MTG1 MTG7 MTG8

Worse glycemic control, higher rates of diabetic ketoacidosis, and more hospitalizations in children, adolescents, and young adults with type 1 diabetes and anxiety disorders


Author(s): Galler A, Tittel SR, Baumeister H, Reinauer C, Brosig B, Becker M, Haberland H, Hilgard D, Jivan M, Mirza J, Schwab J, Holl RW
Affiliated Institution / ERN: Charité Universitätsmedizin Berlin ; Ulm University Medical Center ; Klinikum der Universität München ; Universitätsklinikum Düsseldorf ; Centre Hospitalier de Luxembourg ;
Condition / Disease: Type 1 Diabetes Mellitus
Publication: Pediatric Diabetes v22.3 p519-528 Year: 2021 ORPHAcode / other: 5A10
DOI: 10.1111/pedi.13177 Keywords:
MTG3

Lower HbA1c targets are associated with better metabolic control


Author(s): Van Loocke M, Battelino T, Tittel SR, Prahalad P, Goksen D, Davis E, Casteels K
Affiliated Institution / ERN: UZ Leuven ; University Medical Centre Ljubljana ; Ulm University Medical Center ;
Condition / Disease: Diabetes mellitus
Publication: European Journal of Pediatrics v180.5 p1513-1520 Year: 2021 ORPHAcode / other: ORPHA101952
DOI: 10.1007/s00431-020-03891-2 Keywords: Children,HbA1c,Metabolic control,SWEET
MTG3

The diagnostic accuracy of adjusted unconventional indices for adrenal vein sampling in the diagnosis of primary aldosteronism subtypes


Author(s): Parasiliti-Caprino M, Bioletto F, Ceccato F, Lopez C, Bollati M, Voltan G, Rossato D, Giraudo G, Scaroni C, Ghigo E, Maccario M
Affiliated Institution / ERN: AO City of Health and Science - Turin ; University Hospital of Padova ;
Condition / Disease: Primary aldosteronism
Publication: Journal of Hypertension v39.5 p1025-1033 Year: 2021 ORPHAcode / other: ORPHA181415
DOI: 10.1097/HJH.0000000000002700 Keywords:
MTG1

A simplified primary aldosteronism surgical outcome score is a useful prediction model when target organ damage is unknown – Retrospective cohort study


Author(s): Suurd DP, Visscher WP, Vorselaars WM, van Beek D, Spiering W, Borel Rinkes IH, Valk GD, Vriens MR, Zarnegar R, Fahey TJ, Duh QY, Shen WT, Drake FT, McAneny DB, McManus C, Lee JA, Grant SB, Grogan RH, Romero Arenas MA, Perrier ND, Sturgeon C, Castelino T, Mitmaker EJ, Parente DN, Pasternak JD, Sidhu SB, Sywak M, D'Amato G, Raffaelli M, Schuermans V, Bouvy ND, Eker HH, Bonjer JH, Engelsman AF, van Dijkum EJN, Kerstens MN, Kruijff S
Affiliated Institution / ERN: Hospital Universitario Cruces ; Karolinska University Hospital ; IRCCS Istituto Giannina Gaslini, Genova ; General Hospital of Athens “LAIKO” ;
Condition / Disease: Primary aldosteronism
Publication: Annals of Medicine & Surgery v65 Year: 2021 ORPHAcode / other: ORPHA181415
DOI: 10.1016/j.amsu.2021.102333 Keywords: Adrenalectomy,Blood pressure,Endocrine surgery,Hypertension,PASO score,Primary aldosteronism
MTG1

A Comparison of Familial and Sporadic Type 1 Diabetes Among Young Patients


Author(s): Karges B, Prinz N, Placzek K, Datz N, Papsch M, Strier U, Agena D, Bonfig W, Kentrup H, Holl RW
Affiliated Institution / ERN: University Hospital Aachen ; Ulm University Medical Center ; Hannoversche Kinderheilanstalt ; Klinikum Wels Grieskirchen ;
Condition / Disease: Type 1 diabetes mellitus
Publication: Diabetes Care v44.5 p1116-1124 Year: 2021 ORPHAcode / other: 5A10
DOI: 10.2337/dc20-1829 Keywords:
MTG3

Lifetime impact of achondroplasia: Current evidence and perspectives on the natural history


Author(s): Hoover-Fong J, Cheung MS, Fano V, Hagenas L, Hecht JT, Ireland P, Irving M, Mohnike K, Offiah AC, Okenfuss E, Ozono K, Raggio C, Tofts L, Kelly D, Shediac R, Pan W, Savarirayan R
Affiliated Institution / ERN: Merkur University Hospital ; ERN BOND ;
Condition / Disease: Achondroplasia
Publication: Bone v146 p115872 Year: 2021 ORPHAcode / other: ORPHA15
DOI: 10.1016/j.bone.2021.115872 Keywords: Achondroplasia,Cervicomedullary decompression,Fibroblast growth factor receptor 3 (FGFR3),Foramen magnum stenosis,Genu varum,Natural history,Skeletal dysplasia

Is there any gender difference in epidemiology, clinical presentation and co-morbidities of non-functioning pituitary adenomas? A prospective survey of a National Referral Center and review of the literature


Author(s): Di Somma C, Scarano E, de Alteriis G, Barrea L, Riccio E, Arianna R, Savastano S, Colao A
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Non-functioning pituitary adenoma
Publication: Journal of Endocrinological Investigation v44.5 p957-968 Year: 2021 ORPHAcode / other: ORPHA91349
DOI: 10.1007/s40618-020-01379-2 Keywords: Cardio-metabolic indices,Gender differences,Hypopituitarism,Metabolic syndrome,NFPA,Tumor size
MTG6

Women’s perceptions of femininity after craniopharyngioma: a qualitative study


Author(s): Eydoux R, Castinetti F, Authier M, Vialle M, Albarel F, Brue T, Courbiere B
Affiliated Institution / ERN:
Condition / Disease: Craniopharyngioma
Publication: Clinical Endocrinology v94.5 p880-887 Year: 2021 ORPHAcode / other: ORPHA54595
DOI: 10.1111/cen.14378 Keywords: Craniopharyngioma,body image,femininity,infertility,intimacy,qualitative study,sexuality
MTG6

Gender incongruence and gender dysphoria in childhood and adolescence—current insights in diagnostics, management, and follow-up


Author(s): Claahsen - van der Grinten H, Verhaak C, Steensma T, Middelberg T, Roeffen J, Klink D
Affiliated Institution / ERN: Radboud University Medical Centre Nijmegen ; Amsterdam UMC ; University Medical Center Groningen ; Ghent University Hospital ;
Condition / Disease: Gender dysphoria
Publication: European Journal of Pediatrics v180.5 p1349-1357 Year: 2021 ORPHAcode / other: F64
DOI: 10.1007/s00431-020-03906-y Keywords: Gender dysphoria,Gender incongruence,Gender-affirming treatment,Pubertal suppression,Transgender care
MTG7

In vitro effects of the endocrine disruptor p,p′DDT on human choriogonadotropin/luteinizing hormone receptor signalling


Author(s): Munier M, Ayoub M, Suteau V, Gourdin L, Henrion D, Reiter E, Rodien P
Affiliated Institution / ERN:
Condition / Disease:
Publication: Archives of Toxicology v95.5 p1671-1681 Year: 2021 ORPHAcode / other:
DOI: 10.1007/s00204-021-03007-1 Keywords: DDT,Endocrine disrupting chemical,HCG/LHR signaling,Steroidogenesis

Nodal metastatic load in papillary thyroid carcinoma. Morphological and molecular analysis with one-step nucleic acid amplification on more than 550 lymph nodes


Author(s): Iglesias C, González O, Temprana-Salvador J, García-Burillo A, Caubet E, Ramón y Cajal S, Zafon C
Affiliated Institution / ERN:
Condition / Disease: Follicular thyroid carcinoma
Publication: Endocrinología, Diabetes y Nutrición v68.5 p346-353 Year: 2021 ORPHAcode / other: ORPHA146
DOI: 10.1016/j.endinu.2020.04.004 Keywords: Carcinoma de tiroides,Linfadenectomía,Lymph node metastasis,Lymphadenectomy,Metástasis linfática,OSNA,Thyroid carcinoma
MTG8

Case Report: Complete Necrosis of a Large Adrenocortical Cancer and Liver Metastases Achieved by Selective Arterial Embolization: A Case Study and Review of Literature


Author(s): Huszty G, Doros A, Farkas K, Kóbori L, Reismann P, Tőke J, Tóth M, Igaz P
Affiliated Institution / ERN: Semmelweis University ;
Condition / Disease: Adrenocortical carcinoma
Publication: Frontiers in Endocrinology v12 Year: 2021 ORPHAcode / other: ORPHA1501
DOI: 10.3389/fendo.2021.677187 Keywords: adrenocortical cancer,embolization,liver metastasis,necrosis,trans-arterial
MTG1
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  • an identification number
  • location data
  • an online identifier or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person

Cookies

Endo-ERN only tracks anonymised data for statistical purposes. We do this via analytical cookies, placed through an anonymous IP Google analytics tag. The purpose of these cookies are to track the efficiency and success of the website.

These cookies do not store any personal data that can be linked to a natural person, but may save data such as inter alia, data about the website from which a person has come (the so-called referrer), which sub-pages were visited, or how often and for what duration a sub-page was viewed. The data collected through this is general data only, and cannot be traced back to one person.

It is possible to prevent the setting of cookies, by means of a setting of the Internet browser used. On top of that, already set cookies may be deleted at any time via an Internet browser or other software programs. This is possible in all popular Internet browsers.

Google Analytics does not share any data with third parties.

The principles of data protection do not apply to anonymous information and because these cookies minimally impact the privacy of the user, it is not necessary to ask for permission to use these cookies.

Newsletter

You may always unsubscribe from our newsletter at any time through the unsubscribe button located in our newsletter. Endo-ERN is both the controller and responsible for processing of any data regarding the newsletter. Endo-ERN does not make use of a third party for the Newsletter service.

E-services

Endo-ERN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the Endo-ERN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The Endo-ERN newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. Endo-ERN may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. 
The data collected through this tracking is generated and stored by Endo-ERN and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

For any questions regarding our privacy policy, please contact the Endo-ERN coordinating office.

You have the right to be forgotten and removed completely from the Endo-ERN contact database. To request this, please contact the Endo-ERN coordinating office.

Endo-ERN Coordinating Center, Meibergdreef 9, 1105 AZ  AMSTERDAM. The Netherlands

 info@endo-ern.eu
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