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    Endocrine Conditions

    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

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    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
    • MTG3Genetic Disorders of Glucose & Insulin Homeostasis
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    • MTG5Growth & Genetic Obesity Syndromes
    • MTG6Hypothalamic and Pituitary Conditions
    • MTG7Sex Development & Maturation
    • MTG8Thyroid
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    Endo-ERN is a network of 100+ Reference Centres (RCs) in 27 EU member states+Norway that offers access to clinical experts for patients with rare endocrine conditions.  

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Endo ERN
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/ Publications Overview / Publications Database

Endo-ERN Publications Database

RDD IssuesBack to Publications Overview

Filter list of publications

890 publication(s) found matching the search criteria

Multicenter retro-prospective observational study on chronic hypoparathyroidism and rhPTH (1–84) treatment


Author(s): Marcucci G, Beccuti G, Carosi G, Cetani F, Cianferotti L, Colao AM, Di Somma C, Duradoni M, Elefante A, Ghizzoni L, Giusti M, Lania AG, Lavezzi E, Madeo B, Mantovani G, Marcocci C, Masi L, Parri S, Pigliaru F, Santonati A, Spada A, Vera L, Brandi ML
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Hypoparathyroidism
Publication: Journal of Endocrinological Investigation v45.9 p1653-1662 Year: 2022 ORPHAcode / other: ORPHA181405
DOI: 10.1007/s40618-022-01800-y Keywords: Chronic hypoparathyroidism,Natpar®,Treatment,rhPTH (1–84)
MTG2

Pubertal induction and transition to adult sex hormone replacement in patients with congenital pituitary or gonadal reproductive hormone deficiency: an Endo-ERN clinical practice guideline


Author(s): A Nordenström, S F Ahmed, E van den Akker, J Blair, M Bonomi, C Brachet, L H A Broersen, H L Claahsen-van der Grinten, A B Dessens, A Gawlik, C H Gravholt, A Juul, C Krausz, T Raivio, A Smyth, P Touraine, D Vitali, O M Dekkers 2
Affiliated Institution / ERN: Karolinska University Hospital ; Erasmus MC: University Medical Center Rotterdam ; IRCCS Auxologico Italian Institute - Milan ; Hôpital Universitaire de Bruxelles (HUDERF-Erasme) ; Radboud University Medical Centre Nijmegen ; Ghent University Hospital ; Medical University of Silesia in Katowice ; Aarhus University Hospital ; Meyer Children’s Hospital Florence ; Helsinki University Hospital (HUS) ; Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpétrière ; Leiden University Medical Center ;
Condition / Disease:
Publication: European Journal of Endocrinology 186(6):G9-G49. doi: 10.1530/EJE-22-0073 Year: 2022 ORPHAcode / other:
DOI: Keywords:
MTG7

Graves’ Disease in the Young: Could We Change the Weather?


Author(s): Rodien P
Affiliated Institution / ERN: CHU d'Angers ;
Condition / Disease: Paediatric-onset Graves disease
Publication: The Journal of Clinical Endocrinology & Metabolism v107.5 pe2186-e2187 Year: 2022 ORPHAcode / other: ORPHA525731
DOI: 10.1210/clinem/dgab909 Keywords: Graves’ disease,adolescents,children,rituximab,thionamide,thyrotoxicosis
MTG8

Effective GH Replacement With Once-weekly Somapacitan vs Daily GH in Children with GHD: 3-year Results From REAL 3


Author(s): Sävendahl L, Battelino T, Højby Rasmussen M, Brod M, Saenger P, Horikawa R
Affiliated Institution / ERN: Karolinska University Hospital ; University Medical Centre Ljubljana ;
Condition / Disease: Growth hormone deficiency
Publication: The Journal of Clinical Endocrinology & Metabolism v107.5 p1357-1367 Year: 2022 ORPHAcode / other: ORPHA631
DOI: 10.1210/clinem/dgab928 Keywords: childhood growth hormone deficiency,growth hormone,growth hormone deficiency,growth hormone replacement therapy,long-acting growth hormone,somapacitan
MTG6

Risk factors for gastroenteropancreatic neuroendocrine neoplasms (GEP-NENs): a three-centric case–control study


Author(s): Feola T, Puliani G, Sesti F, Modica R, Centello R, Minotta R, Cannavale G, Di Meglio S, Di Vito V, Lauretta R, Appetecchia M, Colao A, Lenzi A, Isidori AM, Faggiano A, Giannetta E
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: MEN Type 1
Publication: Journal of Endocrinological Investigation v45.4 p849-857 Year: 2022 ORPHAcode / other: ORPHA652
DOI: 10.1007/s40618-021-01715-0 Keywords: Cancer family history,Diabetes mellitus,GEP-NET,Gastroenteropancreatic neuroendocrine neoplasms,Metformin,Obesity
MTG4

Understanding the Patient Experience of Hunger and Improved Quality of Life with Setmelanotide Treatment in POMC and LEPR Deficiencies


Author(s): Wabitsch M, Fehnel S, Mallya UG, Sluga-O’Callaghan M, Richardson D, Price M, Kühnen P
Affiliated Institution / ERN: Ulm University Medical Center ;
Condition / Disease: Rare Genetic Obesity
Publication: Advances in Therapy v39.4 p1772-1783 Year: 2022 ORPHAcode / other: ORPHA77828
DOI: 10.1007/s12325-022-02059-8 Keywords: Disease Burden,Hyperphagia,Leptin Receptor,Melanocortin Receptor,Pro-Opiomelanocortin,Rare Genetic Diseases of Obesity
MTG5

A multigenerational study on phenotypic consequences of the most common causal variant of HNF1A-MODY


Author(s): Kettunen JLT, Rantala E, Dwivedi OP, Isomaa B, Sarelin L, Kokko P, Hakaste L, Miettinen PJ, Groop LC, Tuomi T
Affiliated Institution / ERN: Helsinki University Hospital (HUS) ;
Condition / Disease: Rare Diabetes
Publication: Diabetologia v65.4 p632-643 Year: 2022 ORPHAcode / other: ORPHA101952
DOI: 10.1007/s00125-021-05631-z Keywords: Age at onset,Glucagon,HNF1A-MODY,Insulin deficiency,Lipolysis,MODY3,Maturity-onset diabetes of the young (MODY),Monogenic diabetes,NEFA,Polygenic risk score for type 2 diabetes
MTG3

ENDO-ERN ON RARE ENDOCRINE CONDITIONS: Endo-ERN in its fifth year: a pinch of care, science, curiosity and new horizons


Author(s): Iotova V, Bertherat J, Mastorakos G, Hiort O, Pereira AM
Affiliated Institution / ERN: UMHAT “Sveta Marina” (Varna) ; Assistance Publique-Hôpitaux de Paris, Hôpital Cochin ; Universitätsklinikum Schleswig-Holstein ; Leiden University Medical Center ;
Condition / Disease:
Publication: Endocrine Connections Volume 11: Issue 3 Year: 2022 ORPHAcode / other:
DOI: doi.org/10.1530/EC-22-0082 Keywords:

Significant and persistent improvements in time in range and positive emotions in children and adolescents with type 1 diabetes using a closed-loop control system after attending a virtual educational camp


Author(s): Rabbone I, Savastio S, Pigniatiello C, Carducci C, Berioli MG, Cherubini V, Lo Presti D, Maltoni G, Mameli C, Marigliano M, Minuto N, Mozzillo E, Piccinno E, Predieri B, Rigamonti A, Ripoli C, Schiaffini R, Lombardo F, Tinti D, Toni S, Zanfardino A, Scaramuzza AE, BassiBassi M, Bonfanti R, Bruzzi P, Delvecchio M, Giorda S, Iafusco D, Salzano G, Maffeis C, Redaelli FC, Marino M, Piccini B, Ricciardi MR, Rosanio FM, Tiberi V, Trada M, Zanetta S, Zucchini S, Calandretti M, Daga FA, Gesuita R, Cavalli C
Affiliated Institution / ERN:
Condition / Disease:
Publication: Acta Diabetologica v59.6 p837-842 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s00592-022-01878-z Keywords: Adolescents,Advanced hybrid closed loop,Children,Closed-loop control,Emotions,Type 1 diabetes,Virtual educational camp

Development and internal validation of a predictive model for the estimation of pheochromocytoma recurrence risk after radical surgery


Author(s): Parasiliti-Caprino M, Bioletto F, Lopez C, Maletta F, Caputo M, Gasco V, La Grotta A, Limone P, Borretta G, Volante M, Papotti M, Terzolo M, Morino M, Pasini B, Veglio F, Ghigo E, Arvat E, Maccario M
Affiliated Institution / ERN: AO City of Health and Science - Turin ;
Condition / Disease: Phaeochromocytoma and paraganglioma
Publication: European Journal of Endocrinology v186.3 p399-406 Year: 2022 ORPHAcode / other: ORPHA573163
DOI: 10.1530/EJE-21-0370 Keywords:
MTG1 MTG4

Parathyroid Function Saving Total Thyroidectomy Using Autofluorescence and Quantified Indocyanine Green Angiography


Author(s): Noltes ME, Metman MJ, Jansen L, Peeperkorn EW, Engelsman AF, Kruijff S
Affiliated Institution / ERN: University Hospital Essen ;
Condition / Disease: Thyroid carcinoma
Publication: VideoEndocrinology v9.1 Year: 2022 ORPHAcode / other: ORPHA100088
DOI: 10.1089/ve.2021.0008 Keywords: ICG angiography,autofluorescence,hypoparathyroidism,parathyroid,total thyroidectomy
MTG2 MTG8

Haplotype analysis of the X chromosome in patients with Turner syndrome in order to verify the possible effect of imprinting on selected symptoms


Author(s): Vrtel P, Vrtel R, Klaskova E, Vrbicka D, Adamova K, Pavlicek J, Hana V, Hana V, Soucek O, Stara V, Lebl J, Snajdrova M, Zapletalova J, Furst T, Kapralova S, Tauber Z, Krejcirikova E, Routilova M, Stellmachova J, Vodicka R, Prochazka M
Affiliated Institution / ERN: AOU Federico II - Naples ; General University Hospital in Prague ; University Hospital Motol ;
Condition / Disease: 45,X
Publication: Biomedical Papers v166.1 p63-67 Year: 2022 ORPHAcode / other: ORPHA881
DOI: 10.5507/bp.2020.060 Keywords: Turner syndrome,chromosome X origin,haplotype,imprinting,karyotype,phenotype
MTG7

Artificial Sepsis: Think Twice Before Pausing Therapy


Author(s): Mathew A, Führer D, Lahner H
Affiliated Institution / ERN: ERN BOND ; University Hospital Essen ;
Condition / Disease: Pancreatic neuroendocrine tumour
Publication: The American Journal of Medicine v135.3 pe73-e74 Year: 2022 ORPHAcode / other: ORPHA97253
DOI: 10.1016/j.amjmed.2021.10.006 Keywords:

Causal and Candidate Gene Variants in a Large Cohort of Women With Primary Ovarian Insufficiency


Author(s): Gorsi B, Hernandez E, Moore MB, Moriwaki M, Chow CY, Coelho E, Taylor E, Lu C, Walker A, Touraine P, Nelson LM, Cooper AR, Mardis ER, Rajkovic A, Yandell M, Welt CK
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpétrière ;
Condition / Disease: Primary Ovarian Insufficiency
Publication: The Journal of Clinical Endocrinology & Metabolism v107.3 p685-714 Year: 2022 ORPHAcode / other: ORPHA95709
DOI: 10.1210/clinem/dgab775 Keywords: genetics,menopause,sporadic,whole exome sequencing
MTG7

Long-Term Efficacy of T3 Analogue Triac in Children and Adults With MCT8 Deficiency: A Real-Life Retrospective Cohort Study


Author(s): van Geest FS, Groeneweg S, van den Akker ELT, Bacos I, Barca D, van den Berg SAA, Bertini E, Brunner D, Brunetti-Pierri N, Cappa M, Cappuccio G, Chatterjee K, Chesover AD, Christian P, Coutant R, Craiu D, Crock P, Dewey C, Dica A, Dimitri P, Dubey R, Enderli A, Fairchild J, Gallichan J, Garibaldi LR, George B, Hackenberg A, Heinrich B, Huynh T, Kłosowska A, Lawson-Yuen A, Linder-Lucht M, Lyons G, Monti Lora F, Moran C, Müller KE, Paone L, Paul PG, Polak M, Porta F, Reinauer C, de Rijke YB, Seckold R, Menevşe TS, Simm P, Simon A, Spada M, Stoupa A, Szeifert L, Tonduti D, van Toor H, Turan S, Vanderniet J, de Waart M, van der Wal R, van der Walt A, van Wermeskerken A, Wierzba J, Zibordi F, Zung A, Peeters RP, Visser WE
Affiliated Institution / ERN: IRCCS Auxologico Italian Institute - Milan ; Semmelweis University ; Universitätsklinikum Düsseldorf ; AO City of Health and Science - Turin ; AOU Federico II - Naples ; Erasmus MC: University Medical Center Rotterdam ; Clinical Psychiatric Hospital "Alexandru Obregia" ; CHU d'Angers ;
Condition / Disease: MCT8 deficiency
Publication: The Journal of Clinical Endocrinology & Metabolism v107.3 pe1136-e1147 Year: 2022 ORPHAcode / other: ORPHA59
DOI: 10.1210/clinem/dgab750 Keywords: AHDS,Allan-Herndon-Dudley syndrome,MCT8 deficiency,T3 analogue,thyromimetic drug
MTG8

The Accuracy of Simple and Adjusted Aldosterone Indices for Assessing Selectivity and Lateralization of Adrenal Vein Sampling in the Diagnosis of Primary Aldosteronism Subtypes


Author(s): Parasiliti-Caprino M, Bioletto F, Ceccato F, Lopez C, Bollati M, Di Carlo MC, Voltan G, Rossato D, Giraudo G, Scaroni C, Ghigo E, Maccario M
Affiliated Institution / ERN: Medical University of Vienna,Center for Rare Diabetes and Congenital Hyperinsulinism / Dpt. of Pedia ; AO City of Health and Science - Turin ; University Hospital of Padova ;
Condition / Disease: Primary aldosteronism
Publication: Frontiers in Endocrinology v13 Year: 2022 ORPHAcode / other: ORPHA181415
DOI: 10.3389/fendo.2022.801529 Keywords: adrenal glands,adrenal tumor,adrenalectomy,aldosterone,cortisol,endocrine hypertension,hypokalemia,secondary hypertension
MTG1

Atrial Fibrillation and Aortic Ectasia as Complications of Primary Aldosteronism: Focus on Pathophysiological Aspects


Author(s): Bollati M, Lopez C, Bioletto F, Ponzetto F, Ghigo E, Maccario M, Parasiliti-Caprino M
Affiliated Institution / ERN:
Condition / Disease: Primary aldosteronism
Publication: International Journal of Molecular Sciences v23.4 p2111 Year: 2022 ORPHAcode / other: ORPHA181415
DOI: 10.3390/ijms23042111 Keywords: adrenal glands,aldosterone,aortic ectasia,atrial fibrillation,cardiovascular risk,endocrine hypertension,hypokalemia,primary aldosteronism,secondary hypertension
MTG1

Pubertal development in 46,XY patients with NR5A1 mutations


Author(s): Mönig I, Schneidewind J, Johannsen TH, Juul A, Werner R, Lünstedt R, Birnbaum W, Marshall L, Wünsch L, Hiort O
Affiliated Institution / ERN: Universitätsklinikum Schleswig-Holstein ; Copenhagen University Hospital, Rigshospitalet ;
Condition / Disease: Disorder of gonadal development
Publication: Endocrine v75.2 p601-613 Year: 2022 ORPHAcode / other: ORPHA325118
DOI: 10.1007/s12020-021-02883-y Keywords: Differences of sex development,NR5A1 mutation,Pubertal development,Virilization
MTG7

Congenital Micropenis: Etiology And Management


Author(s): Stancampiano MR, Suzuki K, O’Toole S, Russo G, Yamada G, Faisal Ahmed S
Affiliated Institution / ERN: San Raffaele hospital - Milan ; Leiden University Medical Center ;
Condition / Disease: Micropenis
Publication: Journal of the Endocrine Society v6.2 Year: 2022 ORPHAcode / other:
DOI: 10.1210/jendso/bvab172 Keywords: DSD,gonadotropins,micropenis,testosterone
MTG5 MTG6 MTG7

Función tiroidea en el recién nacido prematuro con edad gestacional igual o menor a 32 semanas


Author(s): Montaner-Ramón A, Hernández-Pérez S, Campos-Martorell A, Ballesta-Anguiano M, Clemente-León M, Castillo- Salinas F
Affiliated Institution / ERN:
Condition / Disease: Thyroid dysfunction and prematurity
Publication: Anales de Pediatría v96.2 p130-137 Year: 2022 ORPHAcode / other: KB64
DOI: 10.1016/j.anpedi.2020.10.023 Keywords: Función tiroidea,Pequeño para la edad gestacional,Prematuridad,Prematurity,Small for gestational age,Thyroid function,Thyrotropin,Thyroxine,Tirotropina,Tiroxina
MTG8

Meiotic genes in premature ovarian insufficiency: variants in HROB and REC8 as likely genetic causes


Author(s): Tucker EJ, Bell KM, Robevska G, van den Bergen J, Ayers KL, Listyasari N, Faradz SM, Dulon J, Bakhshalizadeh S, Sreenivasan R, Nouyou B, Carre W, Akloul L, Duros S, Domin-Bernhard M, Belaud-Rotureau M, Touraine P, Jaillard S, Sinclair AH
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Cochin ;
Condition / Disease: Premature ovarian insufficiency
Publication: European Journal of Human Genetics v30.2 p219-228 Year: 2022 ORPHAcode / other: ORPHA95710
DOI: 10.1038/s41431-021-00977-9 Keywords:
MTG7

Management recommendations for pancreatic manifestations of von Hippel–Lindau disease


Author(s): Laks S, van Leeuwaarde R, Patel D, Keutgen XM, Hammel P, Nilubol N, Links TP, Halfdanarson TR, Daniels AB, Tirosh A
Affiliated Institution / ERN: University Medical Center Groningen ;
Condition / Disease: VHL Syndrome
Publication: Cancer v128.3 p435-446 Year: 2022 ORPHAcode / other: ORPHA892
DOI: 10.1002/cncr.33978 Keywords: neuroendocrine tumor,pancreas,recommendations,surveillance,von Hippel-Lindau
MTG4

Quality of Life and Treatment Satisfaction in Participants with Maturity-Onset Diabetes of the Young: A Comparison to Other Major Forms of Diabetes


Author(s): Dusatkova P, Pavlikova M, Spirkova A, Elblova L, Zdarska DJ, Rozenkova K, Hron J, Sumnik Z, Cinek O, Lebl J, Pruhova S
Affiliated Institution / ERN:
Condition / Disease: Monogenic diabetes
Publication: Experimental and Clinical Endocrinology & Diabetes v130.02 p85-93 Year: 2022 ORPHAcode / other: ORPHA99885
DOI: 10.1055/a-1200-1482 Keywords:
MTG3

Pituitary Society Delphi Survey: An international perspective on endocrine management of patients undergoing transsphenoidal surgery for pituitary adenomas


Author(s): Tritos NA, Fazeli PK, McCormack A, Mallea-Gil SM, Pineyro MM, Christ-Crain M, Frara S, Labadzhyan A, Ioachimescu AG, Shimon I, Takahashi Y, Gurnell M, Fleseriu M, Bancos I, Bidlingmaier M, Biermasz N, Boguszewski CL, Brzana J, Carmichael J, Chanson P, Drincic A, Eisenberg Y, Fukuoka H, Gadelha M, Ghalib L, Gordon M, Greenman Y, Guarda F, Hinojosa-Amaya M, Ho K, Ilie M, Karavitaki N, Katznelson L, Keleştimur F, Lacroix A, Langlois F, Lim D, Neggers S, Niculescu D, Petersenn S, Pivonello R, Raverot G, Ross R, Salvatori R, Scaroni C, Shafiq I, Sharma S, Tabarin A, Tsagarakis S, Valassi E, Vila G, Wierman M
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Pituitary Adenoma
Publication: Pituitary v25.1 p64-73 Year: 2022 ORPHAcode / other: ORPHA99408
DOI: 10.1007/s11102-021-01170-3 Keywords: Delphi process,Hypopituitarism,Perioperative,Pituitary adenoma,Postoperative assessment,Transsphenoidal surgery
MTG6

Vitamin D deficiency and tumor aggressiveness in gastroenteropancreatic neuroendocrine tumors


Author(s): Altieri B, Barrea L, Modica R, Bottiglieri F, de Cicco F, Muscogiuri G, Circelli L, Savarese G, Di Somma C, Savastano S, Colao A, Faggiano A
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease:
Publication: Endocrine v75.2 p623-634 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s12020-021-02869-w Keywords: 25(OH)D,MEN1,Neuroendocrine tumor,PTH,Prognosis,Somatostatin analogs,Vitamin D
MTG4

Glucose control in home-isolated adults with type 1 diabetes affected by COVID-19 using continuous glucose monitoring


Author(s): Longo M, Scappaticcio L, Petrizzo M, Castaldo F, Sarnataro A, Forestiere D, Caiazzo F, Bellastella G, Maiorino MI, Capuano A, Esposito K
Affiliated Institution / ERN: AOU University of Campania "Luigi Vanvitelli", Naples ;
Condition / Disease:
Publication: Journal of Endocrinological Investigation v45.2 p445-452 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-021-01669-3 Keywords: CGM,COVID-19,CSII,Glucose control,MDI,Type 1 diabetes

Low-Iodine Diet of 4 Days Is Sufficient Preparation for 131I Therapy in Differentiated Thyroid Cancer Patients


Author(s): Dekker BL, Links MH, Muller Kobold AC, Swart-Busscher LG, Kars M, Bons JAP, Brouwers AH, Links TP, van der Horst-Schrivers ANA
Affiliated Institution / ERN: University Hospital Essen ; Ulm University Medical Center ;
Condition / Disease: Follicular thyroid carcinoma
Publication: The Journal of Clinical Endocrinology & Metabolism v107.2 pe604-e611 Year: 2022 ORPHAcode / other: ORPHA146
DOI: 10.1210/clinem/dgab691 Keywords: individual perceptions,iodine intake,low-iodine diet,nutrition diary,radioactive iodine therapy,urinary iodine excretion
MTG8

Resistance to Dopamine Agonists in Pituitary Tumors: Molecular Mechanisms


Author(s): Pivonello C, Patalano R, Negri M, Pirchio R, Colao A, Pivonello R, Auriemma RS
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Pituitary Adenoma
Publication: Frontiers in Endocrinology v12 Year: 2022 ORPHAcode / other: ORPHA99408
DOI: 10.3389/fendo.2021.791633 Keywords: cabergoline,dopamine,dopamine agonist,pituitary tumors,prolactinomas
MTG6

Adipocyte–Breast Cancer Cell Co-Culture in Transwells


Author(s): Ayaani SP, Wabitsch M, Christian M
Affiliated Institution / ERN:
Condition / Disease:
Publication: Methods in Molecular Biology p59-68 Year: 2022 ORPHAcode / other:
DOI: 10.1007/978-1-0716-2376-3_6 Keywords: Adipocyte,Breast cancer,Cell co-culture,Corning® Transwell®,MCF-7,SGBS,Simpson–Golabi–Behmel syndrome

The Influence of DXA Hardware, Software, Reference Population and Software Analysis Settings on the Bone Mineral Density and T-Score Relationship


Author(s): Lundstam K, Godang K, Pretorius M, Markwardt P, Hellström M, Bollerslev J, Heck A
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Clinical Densitometry v25.1 p24-33 Year: 2022 ORPHAcode / other:
DOI: 10.1016/j.jocd.2021.07.002 Keywords: BMD,hardware,reference population,settings,software,t-score
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Newsletter

You may always unsubscribe from our newsletter at any time through the unsubscribe button located in our newsletter. Endo-ERN is both the controller and responsible for processing of any data regarding the newsletter. Endo-ERN does not make use of a third party for the Newsletter service.

E-services

Endo-ERN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the Endo-ERN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The Endo-ERN newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. Endo-ERN may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. 
The data collected through this tracking is generated and stored by Endo-ERN and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

For any questions regarding our privacy policy, please contact the Endo-ERN coordinating office.

You have the right to be forgotten and removed completely from the Endo-ERN contact database. To request this, please contact the Endo-ERN coordinating office.

Endo-ERN Coordinating Center, Meibergdreef 9, 1105 AZ  AMSTERDAM. The Netherlands

 info@endo-ern.eu
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