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    Endocrine Conditions

    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

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    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
    • MTG3Genetic Disorders of Glucose & Insulin Homeostasis
    • MTG4Genetic Endocrine Tumour Syndromes
    • MTG5Growth & Genetic Obesity Syndromes
    • MTG6Hypothalamic and Pituitary Conditions
    • MTG7Sex Development & Maturation
    • MTG8Thyroid
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Endo ERN
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/ Publications Overview / Publications Database

Endo-ERN Publications Database

RDD IssuesBack to Publications Overview

Filter list of publications

890 publication(s) found matching the search criteria

Use of multikinase inhibitors/lenvatinib in singular thyroid cancer scenarios


Author(s): Zafón C, Castelo B
Affiliated Institution / ERN: Hospital Universitari Vall d’Hebron ;
Condition / Disease: Non-metastatic Thyroid Carcinoma
Publication: Cancer Medicine v11.S1 p3-4 Year: 2022 ORPHAcode / other: ORPHA100088
DOI: 10.1002/cam4.5154 Keywords:
MTG8

Impact of gender-affirming treatment on bone health in transgender and gender diverse youth


Author(s): Ciancia S, Dubois V, Cools M
Affiliated Institution / ERN:
Condition / Disease:
Publication: Endocrine Connections doi.org/10.1530/EC-22-0280 Year: 2022 ORPHAcode / other:
DOI: Keywords:
MTG7

Stochastic epigenetic mutations as possible explanation for phenotypical discordance among twins with congenital hypothyroidism


Author(s): Gentilini D, Muzza M, de Filippis T, Vigone MC, Weber G, Calzari L, Cassio A, Di Frenna M, Bartolucci M, Grassi ES, Carbone E, Olivieri A, Persani L
Affiliated Institution / ERN: San Raffaele hospital - Milan ;
Condition / Disease: Permanent congenital hypothyroidism
Publication: Journal of Endocrinological Investigation v46.2 p393-404 Year: 2022 ORPHAcode / other: ORPHA226292
DOI: 10.1007/s40618-022-01915-2 Keywords: Congenital diseases,Genome-wide DNA methylation,Preterm delivery,Thyroid,Thyroid dysgenesis,Twin gestation
MTG8

Prader–Willi Syndrome in Adults: An Update On Nutritional Treatment and Pharmacological Approach


Author(s): Barrea L, Vetrani C, Fintini D, de Alteriis G, Panfili FM, Bocchini S, Verde L, Colao A, Savastano S, Muscogiuri G
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Prader Willi Syndrome and Prader Willi-like Syndrome
Publication: Current Obesity Reports v11.4 p263-276 Year: 2022 ORPHAcode / other: ORPHA739
DOI: 10.1007/s13679-022-00478-w Keywords: Diet,Drugs,Ketogenic diet,Nutrition,Nutritionist,Obesity,Prader–Willi syndrome
MTG5

A Critical Evaluation of the EU-virtual consultation platform (CPMS) within the European Reference Network on Rare Endocrine Conditions


Author(s): White EK, Wagner IV, Beuzekom C van, Iotova V, Ahmed SF, Hiort O, Pereira A
Affiliated Institution / ERN: Leiden University Medical Center ; Amsterdam UMC ; Universitätsklinikum Schleswig-Holstein ; UMHAT “Sveta Marina” (Varna) ;
Condition / Disease:
Publication: Endocrine Connections Volume 11: Issue 11 Year: 2022 ORPHAcode / other:
DOI: doi.org/10.1530/EC-22-0281 Keywords:

Pediatric Graves’ orbitopathy: a multicentre study


Author(s): Ionescu IC, van Trotsenburg PAS, Paridaens D, Tanck M, Mooij CF, Cagienard E, Kalmann R, Pakdel F, van der Meeren S, Saeed P
Affiliated Institution / ERN: Amsterdam UMC ; Erasmus MC: University Medical Center Rotterdam ; University Medical Center Utrecht ; Leiden University Medical Center ;
Condition / Disease: Paediatric-onset Graves disease
Publication: Acta Ophthalmologica v100.6 Year: 2022 ORPHAcode / other: ORPHA525731
DOI: 10.1111/aos.15084 Keywords: Graves’ disease,Graves’ orbitopathy,orbital decompression,paediatric,rehabilitative surgery,severity,thyroid eye disease
MTG8

Adult- and late-onset male hypogonadism: the clinical practice guidelines of the Italian Society of Andrology and Sexual Medicine (SIAMS) and the Italian Society of Endocrinology (SIE)


Author(s): Isidori AM, Aversa A, Calogero A, Ferlin A, Francavilla S, Lanfranco F, Pivonello R, Rochira V, Corona G, Maggi M
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Endocrinological Investigation v45.12 p2385-2403 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-022-01859-7 Keywords: Bone mineral density,Erectile dysfunction,Hypogonadism,Late-onset hypogonadism,Metabolic syndrome,Obesity,Testosterone

Sellar and parasellar lesions in the transition age: a retrospective Italian multi-centre study


Author(s): Feola T, Pirchio R, Puliani G, Pofi R, Crocco M, Sada V, Sesti F, Verdecchia F, Gianfrilli D, Appetecchia M, Di Iorgi N, Jaffrain-Rea ML, Pivonello R, Isidori AM, Grossman AB, Sbardella E, Savage AM, Foresta C, Krausz C, Durante C, De Martino MC, Paoli D, Ferrigno R, Caiulo S, Minnetti M, Hasenmajer V, Pozza C, Kanakis G, Cangiano B, Tenuta M, Petrozzi A, Carlomagno F, Di Nisio A, Pallotti F, Tarsitano MG, Spaziani M, Cargnelutti F, Sabovic I, Grani G, Virili C, Cozzolino A, Stramazzo I, Filardi T, Mazzotta P
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Endocrinological Investigation v46.1 p181-188 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-022-01900-9 Keywords: Adolescence,Parasellar lesions,Pituitary tumours,Sellar,Transition age,Young adults

Time With Glucose Level in Target Range Among Children and Adolescents With Type 1 Diabetes After a Software Update to a Closed-Loop Glucose Control System


Author(s): Marigliano M, Scaramuzza AE, Bonfanti R, Rabbone I, Schiaffini R, Toni S, Cherubini V, Abate Daga F, Bassi M, Berioli MG, Bruzzi P, Calandretti M, Carducci C, Cavalli C, Delvecchio M, Gesuita R, Giorda S, Iafusco D, Lenzi L, Lombardo F, Lo Presti D, Maffeis C, Maltoni G, Mameli C, Marino M, Piccini B, Minuto N, Mozzillo E, Piccinno E, Pignatiello C, Predieri B, Redaelli FC, Ricciardi MR, Rigamonti A, Ripoli C, Rosanio FM, Salzano G, Savastio S, Tiberi V, Tinti D, Trada M, Zanetta S, Zanfardino A, Zucchini S
Affiliated Institution / ERN: Meyer Children’s Hospital Florence ; AOU-Bologna ;
Condition / Disease:
Publication: JAMA Network Open v5.8 pe2228669 Year: 2022 ORPHAcode / other:
DOI: 10.1001/jamanetworkopen.2022.28669 Keywords:
MTG3

Comprehensive molecular analysis of immortalization hallmarks in thyroid cancer reveals new prognostic markers


Author(s): Montero‐Conde C, Leandro‐García LJ, Martínez‐Montes ÃM, Martínez P, Moya FJ, Letón R, Gil E, Martínez‐Puente N, Guadalix S, Currás‐Freixes M, García‐Tobar L, Zafon C, Jordà M, Riesco‐Eizaguirre G, González‐García P, Monteagudo M, Torres‐Pérez R, Mancikova V, Ruiz‐Llorente S, Pérez‐Martínez M, Pita G, Galofré JC, Gonzalez‐Neira A, Cascón A, Rodríguez‐Antona C, Megías D, Blasco MA, Caleiras E, Rodríguez‐Perales S, Robledo M
Affiliated Institution / ERN: Hospital Universitari Vall d’Hebron ;
Condition / Disease: Non-metastatic Thyroid Carcinoma
Publication: Clinical and Translational Medicine v12.8 Year: 2022 ORPHAcode / other: ORPHA100088
DOI: 10.1002/ctm2.1001 Keywords: 5p-end FISH,TERC,TERT promoter methylation,TERT promoter mutation,subtelomeric gene expression,telomere shortening
MTG8

Multidisciplinary integrated care pathway for von Hippel–Lindau disease


Author(s): Wolters WPG, Dreijerink KMA, Giles RH, van der Horst‐Schrivers ANA, van Nesselrooij B, Zandee WT, Timmers HJLM, Seute T, de Herder WW, Verrijn Stuart AA, Kilic E, Brinkman WM, Zondervan PJ, Vandertop WP, Daniels AB, Wolbers T, Links TP, van Leeuwaarde RS
Affiliated Institution / ERN: University Medical Center Groningen ;
Condition / Disease: VHL Syndrome
Publication: Cancer v128.15 p2871-2879 Year: 2022 ORPHAcode / other: ORPHA892
DOI: 10.1002/cncr.34265 Keywords: care pathway,hemangioblastoma,pancreatic neuroendocrine tumor,renal cell carcinoma,retinal angioma,von Hippel-Lindau (VHL)
MTG4

The importance of kidney calcium handling in the homeostasis of extracellular fluid calcium


Author(s): Prot-Bertoye C, Lievre L, Houillier P
Affiliated Institution / ERN: Reference centre for rare diseases of calcium and phosphate-HEGP ;
Condition / Disease:
Publication: Pflügers Archiv - European Journal of Physiology v474.8 p885-900 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s00424-022-02725-4 Keywords: Calcium-sensing receptor,Claudin,Paracellular ion transport,Parathyroid hormone,TRPV5,Tight junction,Transcellular ion transport

A nationwide survey of Italian pediatric diabetologists about COVID-19 vaccination in children and adolescents with type 1 diabetes


Author(s): Scaramuzza AE, Cherubini V, Schiaffini R, Rabbone I, Gallo F, Fichera G, Arnaldi C, Bonfanti R, Lombardo F, De Marco R, Pascarella F, Tornese G, Bobbio A, Suprani T, Minuto N, Franceschi R, Piccinno E, Mozzillo E, Savastio S, Piccini B, Frongia AP, Mameli C, Musolino G, Toni S, Randazzo E, Frontino G, Delvecchio M, Sogno Valin P, Reinstadler P, Calcaterra V, De Sanctis L, Trada M, Coccioli MS, Guerraggio LP, Citriniti F, Lasagni A, Rutigliano I, Stamati FA, De Berardinis F, Zampolli M, Maltoni G, Fornari E, Ripoli C, Gaiero A, Sordelli S, d’Annunzio G, Predieri B, Cardinale G, Cardella F, Iafusco D, Corò A, Zucchini S, Maffeis C, Giani E, Tinti D, Cavalli C
Affiliated Institution / ERN: Meyer Children’s Hospital Florence ; AOU-Bologna ;
Condition / Disease:
Publication: Acta Diabetologica v59.8 p1109-1111 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s00592-022-01885-0 Keywords: Adolescents,COVID-19,Children,Type 1 diabetes,Vaccination,Vaccine

Are there country-specific differences in the use of pegvisomant for acromegaly in clinical practice? An analysis from ACROSTUDY


Author(s): Grottoli S, Bianchi A, Bogazzi F, Bona C, Carlsson MO, Colao A, Dassie F, Giampietro A, Gomez R, Granato S, Maffei P, Pivonello R, Prencipe N, Ragonese M, Urbani C, Cannavò S
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Acromegaly
Publication: Journal of Endocrinological Investigation v45.8 p1535-1545 Year: 2022 ORPHAcode / other: ORPHA963
DOI: 10.1007/s40618-022-01789-4 Keywords: Acromegaly,Effectiveness,Pegvisomant,Real-world analysis,Safety,Treatment schemes
MTG6

New insights into the comorbid conditions of Turner syndrome: results from a long-term monocentric cohort study


Author(s): Gambineri A, Scarano E, Rucci P, Perri A, Tamburrino F, Altieri P, Corzani F, Cecchetti C, Dionese P, Belardinelli E, Ibarra-Gasparini D, Menabò S, Vicennati V, Repaci A, di Dalmazi G, Pelusi C, Zavatta G, Virdi A, Neri I, Fanelli F, Mazzanti L, Pagotto U
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Endocrinological Investigation v45.12 p2247-2256 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-022-01853-z Keywords: Cancer,Cardiovascular events,Osteoporosis,Turner syndrome,Type 2 diabetes

Testosterone in men with hypogonadism and transgender males: a systematic review comparing three different preparations


Author(s): Madsen MC, Heijer MD, Pees C, Biermasz NR, Bakker LEH
Affiliated Institution / ERN:
Condition / Disease:
Publication: Endocrine Connections doi.org/10.1530/EC-22-0112 Year: 2022 ORPHAcode / other:
DOI: Keywords:
MTG7

Hyperinsulinemic Hypoglycemia Associated with a CaV1.2 Variant with Mixed Gain- and Loss-of-Function Effects


Author(s): Kummer S, Rinné S, Seemann G, Bachmann N, Timothy K, Thornton PS, Pillekamp F, Mayatepek E, Bergmann C, Meissner T, Decher N
Affiliated Institution / ERN: Universitätsklinikum Düsseldorf ; Charité Universitätsmedizin Berlin ;
Condition / Disease: Diazoxide-sensitive diffuse hyperinsulinism
Publication: International Journal of Molecular Sciences v23.15 p8097 Year: 2022 ORPHAcode / other: ORPHA165985
DOI: 10.3390/ijms23158097 Keywords: CACNA1C,calcium channel,hyperinsulinism
MTG3

Health-related quality of life in patients with neuroendocrine neoplasms: a two-wave longitudinal study


Author(s): Modica R, Scandurra C, Maldonato NM, Dolce P, Dipietrangelo GG, Centello R, Di Vito V, Giannetta E, Isidori AM, Lenzi A, Faggiano A, Colao A
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Endocrinological Investigation v45.11 p2193-2200 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-022-01872-w Keywords: HRQoL,Metastases,Neuroendocrine tumor,Quality of life,Resilience,Severity

MKRN3 circulating levels in Prader–Willi syndrome: a pilot study


Author(s): Mariani M, Fintini D, Cirillo G, Palumbo S, del Giudice EM, Bocchini S, Manco M, Cappa M, Grandone A
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Endocrinological Investigation v45.11 p2165-2170 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-022-01860-0 Keywords: Hypogonadism,MKRN3,Prader Willi,Puberty

Five-Year Changes in Weight and Diabetes Status After Bariatric Surgery for Craniopharyngioma-Related Hypothalamic Obesity: a Case–Control Study


Author(s): Faucher P, Carette C, Jannot A, Gatta-Cherifi B, Van Straaten A, Piquet M, Raverot G, Alligier M, Batisse T, Ziegler O, Drui D, Bretault M, Farigon N, Slim K, Genser L, Poghosyan T, Vychnevskaia K, Blanchard C, Robert M, Gronnier C, Poitou C, Czernichow S
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpétrière ;
Condition / Disease: Craniopharyngioma
Publication: Obesity Surgery v32.7 p2321-2331 Year: 2022 ORPHAcode / other: ORPHA54595
DOI: 10.1007/s11695-022-06079-9 Keywords: Bariatric surgery,Case–control study,Craniopharyngioma,Hypothalamic obesity,Type 2 diabetes,Weight loss
MTG6

The dopaminergic control of Cushing’s syndrome


Author(s): Pivonello R, Pivonello C, Simeoli C, De Martino MC, Colao A
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Adrenal Cushing syndrome
Publication: Journal of Endocrinological Investigation v45.7 p1297-1315 Year: 2022 ORPHAcode / other: ORPHA647758
DOI: 10.1007/s40618-021-01661-x Keywords: Cabergoline,Cushing’s disease,Cushing’s syndrome,Dopamine,Dopaminergic system
MTG1

Body composition and obstructive sleep apnoea assessment in adult patients with Prader–Willi syndrome: a case control study


Author(s): Pugliese G, Barrea L, Sanduzzi Zamparelli A, de Alteriis G, Laudisio D, Muscogiuri G, Canora A, Bocchino M, Colao A, Savastano S
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Prader Willi Syndrome and Prader Willi-like Syndrome
Publication: Journal of Endocrinological Investigation v45.10 p1967-1975 Year: 2022 ORPHAcode / other: ORPHA739
DOI: 10.1007/s40618-022-01831-5 Keywords: Body composition,Genetic obesity,Obstructive sleep apnoea,Prader–Willi syndrome,Sleep-breathing disorder
MTG5

Computerized tomography texture analysis of pheochromocytoma: relationship with hormonal and histopathological data


Author(s): De Leo A, Vara G, Paccapelo A, Balacchi C, Vicennati V, Tucci L, Pagotto U, Selva S, Ricci C, Alberici L, Minni F, Nanni C, Ambrosi F, Santini D, Golfieri R, Di Dalmazi G, Mosconi C
Affiliated Institution / ERN: AOU-Bologna ;
Condition / Disease: Sporadic PCC/secreting PGL
Publication: Journal of Endocrinological Investigation v45.10 p1935-1944 Year: 2022 ORPHAcode / other: ORPHA276621
DOI: 10.1007/s40618-022-01826-2 Keywords: Adrenal,Computed tomography,Pheocromocytoma,Radiomics,Texture analysis

Sex differences in carcinoid syndrome: A gap to be closed


Author(s): Ruggeri RM, Altieri B, Grossrubatcher E, Minotta R, Tarsitano MG, Zamponi V, MIsidori A, Faggiano A, Colao AM
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease:
Publication: Reviews in Endocrine and Metabolic Disorders v23.3 p659-669 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s11154-022-09719-8 Keywords: Carcinoid syndrome,Epidemiology,Gender difference,Neuroendocrine tumours,Serotonin pathway,Sex
MTG4

Prognostic significance of laterality in lung neuroendocrine tumors


Author(s): La Salvia A, Persano I, Siciliani A, Verrico M, Bassi M, Modica R, Audisio A, Zanata I, Trabalza Marinucci B, Trevisi E, Puliani G, Rinzivillo M, Parlagreco E, Baldelli R, Feola T, Sesti F, Razzore P, Mazzilli R, Mancini M, Panzuto F, Volante M, Giannetta E, Romero C, Appetecchia M, Isidori A, Venuta F, Ambrosio MR, Zatelli MC, Ibrahim M, Colao A, Brizzi MP, García-Carbonero R, Faggiano A
Affiliated Institution / ERN: AOU Federico II - Naples ; ERN BOND ;
Condition / Disease:
Publication: Endocrine v76.3 p733-746 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s12020-022-03015-w Keywords: Ki67 index,Lung neuroendocrine tumors,Mitotic count,Necrosis,Prognostic factors.,Tumor location

Diagnostic Performance of 124I-Metaiodobenzylguanidine PET/CT in Patients with Pheochromocytoma


Author(s): Weber M, Schmitz J, Maric I, Pabst K, Umutlu L, Walz M, Herrmann K, Rischpler C, Weber F, Jentzen W, Theurer S, Poeppel TD, Unger N, Fendler WP
Affiliated Institution / ERN: Children's Clinical University Hospital, Riga ;
Condition / Disease: Pheochromocytoma-paraganglioma
Publication: Journal of Nuclear Medicine v63.6 p869-874 Year: 2022 ORPHAcode / other: ORPHA573163
DOI: 10.2967/jnumed.121.262797 Keywords: 124I-MIBG PET,pheochromocytoma,theranostics
MTG1 MTG4

We mind your step: understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare


Author(s): Davidse K, van Staa A, Geilvoet W, van Eck JP, Pellikaan K, Baan J, Hokken-Koelega ACS, van den Akker ELT, Sas T, Hannema SE, van der Lely AJ, de Graaff LCG
Affiliated Institution / ERN: Erasmus MC: University Medical Center Rotterdam ; Leiden University Medical Center ;
Condition / Disease:
Publication: Endocrine Connections Volume 11: Issue 5 Year: 2022 ORPHAcode / other:
DOI: doi.org/10.1530/EC-22-0025 Keywords: transition to adult care; adolescent; young adult; paediatrics; endocrinology;
MTG1 MTG2 MTG3 MTG4 MTG5 MTG6 MTG7 MTG8

First baseline data of the Klinefelter ItaliaN Group (KING) cohort: clinical features of adult with Klinefelter syndrome in Italy


Author(s): Pasquali D, Chiodini P, Simeon V, Ferlin A, Vignozzi L, Corona G, Lanfranco F, Rochira V, Calogero AE, Bonomi M, Pivonello R, Balercia G, Pizzocaro A, Giagulli VA, Salacone P, Aversa A, Accardo G, Maggi M, Lenzi A, Isidori A, Foresta C, Jannini EA, Garolla A, Pasquali D, Ferlin A, Vignozzi L, Corona G, Lanfranco F, Rochira V, Calogero AE, Bonomi M, Pivonello R, Balercia G, Pizzocaro A, Giagulli VA, Salacone P, Aversa A, Accardo G, Maggi M, Lenzi A, Isidori A, Foresta C, Jannini EA, Garolla A
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease:
Publication: Journal of Endocrinological Investigation v45.9 p1769-1776 Year: 2022 ORPHAcode / other:
DOI: 10.1007/s40618-022-01816-4 Keywords: BMI,FSH,Klinefelter syndrome,LH,MetS,Metabolic syndrome,Testis,Testosterone
MTG6

Current clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN)


Author(s): F M van Haalen, M Kaya, I C M Pelsma, O M Dekkers, N R Biermasz, S C Cannegieter, M V Huisman, B J M van Vlijmen, R A Feelders, F A Klok, A M Pereira, Endo-ERN Cushing and Thrombosis study group
Affiliated Institution / ERN:
Condition / Disease:
Publication: Orphanet Journal of Rare Diseases 178. doi: 10.1186/s13023-022-02320-x Year: 2022 ORPHAcode / other:
DOI: Keywords:
MTG6

Complicated Clinical Course in Incipient Gigantism Due to Treatment-resistant Aryl Hydrocarbon Receptor–Interacting Protein–mutated Pediatric Somatotropinoma


Author(s): van Santen SS, Daly AF, Buchfelder M, Coras R, Zhao Y, Beckers A, van der Lely AJ, Hofland LJ, Balvers RK, van Koetsveld P, van den Heuvel-Eibrink MM, Neggers SJCMM
Affiliated Institution / ERN: Erasmus MC: University Medical Center Rotterdam ; University Hospital Liège ; University Medical Center Utrecht ;
Condition / Disease: Somatotropic adenoma
Publication: AACE Clinical Case Reports v8.3 p119-123 Year: 2022 ORPHAcode / other: ORPHA96256
DOI: 10.1016/j.aace.2021.12.003 Keywords: AIP mutation,AIP, aryl hydrocarbon receptor–interacting protein,GH, growth hormone,IGF-I, insulin-like growth factor I,LAR, long-acting release,NR, normal range,SDS, standardised deviation scores,SSA, somatostatin analog,SSTR, somatostatin receptor,acromegaly,gigantism,macroadenoma,pituitary adenoma,somatotropinoma
MTG6
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Endo-ERN only tracks anonymised data for statistical purposes. We do this via analytical cookies, placed through an anonymous IP Google analytics tag. The purpose of these cookies are to track the efficiency and success of the website.

These cookies do not store any personal data that can be linked to a natural person, but may save data such as inter alia, data about the website from which a person has come (the so-called referrer), which sub-pages were visited, or how often and for what duration a sub-page was viewed. The data collected through this is general data only, and cannot be traced back to one person.

It is possible to prevent the setting of cookies, by means of a setting of the Internet browser used. On top of that, already set cookies may be deleted at any time via an Internet browser or other software programs. This is possible in all popular Internet browsers.

Google Analytics does not share any data with third parties.

The principles of data protection do not apply to anonymous information and because these cookies minimally impact the privacy of the user, it is not necessary to ask for permission to use these cookies.

Newsletter

You may always unsubscribe from our newsletter at any time through the unsubscribe button located in our newsletter. Endo-ERN is both the controller and responsible for processing of any data regarding the newsletter. Endo-ERN does not make use of a third party for the Newsletter service.

E-services

Endo-ERN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the Endo-ERN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The Endo-ERN newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. Endo-ERN may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. 
The data collected through this tracking is generated and stored by Endo-ERN and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

For any questions regarding our privacy policy, please contact the Endo-ERN coordinating office.

You have the right to be forgotten and removed completely from the Endo-ERN contact database. To request this, please contact the Endo-ERN coordinating office.

Endo-ERN Coordinating Center, Meibergdreef 9, 1105 AZ  AMSTERDAM. The Netherlands

 info@endo-ern.eu
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