Endocrine Connections Supplemental Rare Disease Day 2023
This special collection is overseen by the Editor-in-Chief, Adrian Clark and our network’s guest editors George Mastorakos (National and Kapodistrian University of Athens), Violeta Iotova (Medical University of Varna), and Jérôme Bertherat (Hopital Cochin).
Title | Authors |
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ENDO-ERN ON RARE ENDOCRINE CONDITIONS: Endo-ERN in its fifth year: a pinch of care, science, curiosity and new horizons | Iotova V, Bertherat J, Mastorakos G, Hiort O, & Pereira AM |
Doctors, teach your adrenal insufficiency patients well: provide them with a European Emergency Card! | Beun JG, Burman P, Kämpe O, Husebye ES, Hahner S, Kristensen J, … Dahlqvist P |
A Critical Evaluation of the EU-virtual consultation platform (CPMS) within the European Reference Network on Rare Endocrine Conditions | White EK, Wagner IV, Beuzekom C van, Iotova V, Ahmed SF, Hiort O, & Pereira A |
We mind your step: understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare | Davidse K, van Staa A, Geilvoet W, van Eck JP, Pellikaan K, Baan J, … de Graaff LCG |
Mapping of the current transition of care practice for patients with pituitary disease at Endo-ERN reference centers | Shishkov SR, Tuccillo L, Iotova VM, Pivonello R, Pelsma IC, Pereira AM, … Endo-ERN Pituitary Transition of Care Study Group |
Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases | Webb SM, Kristensen J, Nordenström A, Vitali D, Amodru V, Wiehe LK, & Bolz-Johnson M |
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