Partners

ESE

The European Society of Endocrinology (ESE) is the voice for endocrinology in Europe.  ESE supports Endo-ERN with registration, tradeshow booth and a slot on the programme at their annual conference European Congress of Endocrinology (ECE).  
 
Endo-ERN is represented on the ESE Rare Disease Committee and the ESE is represented on the    Endo-ERN Advisory Board.  A Memorandum of Understanding exists between Endo-ERN, ESE and ESPE to expand our cooperation in areas of patient care, education and research.  
 

ESPE

The European Society for Paediatric Endocrinology (ESPE) is an international organisation with the aim to improve the clinical care of children and adolescents with endocrine conditions, including diabetes, through research and education.  
 
Endo-ERN enjoys the support of ESPE with the provision of a tradeshow booth and a slot on the programme at their annual general meeting.   
 
Endo-ERN is represented on the Rare Disease Advisory Committee, and ESPE is represented on the Endo-ERN Advisory Board.  A Memorandum of Understanding exists between Endo-ERN, ESE and ESPE to expand our cooperation in areas of patient care, education and research.     
 
 
ERICA

The aim of the European Rare Disease Research Coordination and Support Action consortium (ERICA), in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity.  

 

EURORDIS

Rare Diseases Europe is a unique, non-profit allicance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.

 

 
JARDIN
JARDIN is a Joint Action to support the integration of European Reference Networks (ERNs) in to national health systems.   

 

 
ERDERA
The European Rare Disease Resarch Alliance (ERDERA) is a partnership that is organised around the ambition to improve the health and well-being of the 30 million people living with a rare disease in Europe by making Europe a world leader in RD research and innovation, to support concrete health benefits to rare disease patients to rare disease patients, through better prevention, diagnosis and treatment.  
 
 
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Privacy Overview
Endo-ERN

Endo-ERN Privacy Policy

Endo-ERN is committed to user’s privacy and does not track personal data when visiting our website. We act in accordance with Regulation 2016/679 of the European Parliament and of the Council.

‘Personal data’ means any information relating to an identified or identifiable natural person. An identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as:

  • a name
  • an identification number
  • location data
  • an online identifier or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person

Cookies

Endo-ERN only tracks anonymised data for statistical purposes. We do this via analytical cookies, placed through an anonymous IP Google analytics tag. The purpose of these cookies are to track the efficiency and success of the website.

These cookies do not store any personal data that can be linked to a natural person, but may save data such as inter alia, data about the website from which a person has come (the so-called referrer), which sub-pages were visited, or how often and for what duration a sub-page was viewed. The data collected through this is general data only, and cannot be traced back to one person.

It is possible to prevent the setting of cookies, by means of a setting of the Internet browser used. On top of that, already set cookies may be deleted at any time via an Internet browser or other software programs. This is possible in all popular Internet browsers.

Google Analytics does not share any data with third parties.

The principles of data protection do not apply to anonymous information and because these cookies minimally impact the privacy of the user, it is not necessary to ask for permission to use these cookies.

Newsletter

You may always unsubscribe from our newsletter at any time through the unsubscribe button located in our newsletter. Endo-ERN is both the controller and responsible for processing of any data regarding the newsletter. Endo-ERN does not make use of a third party for the Newsletter service.

E-services

Endo-ERN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the Endo-ERN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The Endo-ERN newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. Endo-ERN may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. 
The data collected through this tracking is generated and stored by Endo-ERN and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

For any questions regarding our privacy policy, please contact the Endo-ERN coordinating office.

You have the right to be forgotten and removed completely from the Endo-ERN contact database. To request this, please contact the Endo-ERN coordinating office.

Endo-ERN Coordinating Center, Meibergdreef 9, 1105 AZ  AMSTERDAM. The Netherlands

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