Existing guidelines

Hereditary Pheochromocytoma/Paraganglioma Syndromes

• Read Clinical Practice Guideline for long-term follow-up of patients operated on for a phaeochromocytoma or a paraganglioma. (, 154 KB)

Plouin PF, Amar L, Dekkers OM, Fassnacht M, Gimenez-Roqueplo AP, Lenders JW,… Steichen O; Guideline Working Group.
European Journal of Endocrinology , 2016 May; 174(5):G1-G10. doi: 10.1530/EJE-16-0033. A review.

• Read Clinical Practice Guideline on Pheochromocytoma and paraganglioma

Lenders JW, Duh QY, Eisenhofer G, Gimenez-Roqueplo AP, Grebe SK, Murad MH,… Young WF Jr; Endocrine Society.
Journal of Clinical Endocrinology and Metabolism, 2014 Jun; 99(6):1915-42. doi: 10.1210/jc.2014-1498.

MEN1

• Read Clinical Practice Guideline for multiple endocrine neoplasia type 1 (MEN1).

Thakker RV, Newey PJ, Walls GV, Bilezikian J, Dralle H, Ebeling PR,… Brandi ML; Endocrine Society.
Journal of Clinical Endocrinology and Metabolism, 2012 Sep; 97(9):2990-3011. doi: 10.1210/jc.2012-1230. Epub 2012 Jun 20. A Review.

• Read Review on stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1 (, 667 KB)

Dirk-Jan van Beek, Rachel S van Leeuwaarde, Carolina R C Pieterma2, Menno R Vrien and Gerlof D Valk, on behalf of the DutchMEN Study Group
Endocrine Connections, 2018 Nov 7 (11), R260-R274.

MEN2

• Read revised American Thyroid Association Guidelines for the Management of Medullary Thyroid Carcinoma

Samuel A. Wells, Jr., Sylvia L. Asa, Henning Dralle, Rossella Elisei, Douglas B. Evans, Robert F. Gagel,… Steven G. Waguespack
American Thyroid Association, 2015 Jun 1; 25(6): 567–610

• Read Guidelines for diagnosis and therapy of MEN type 1 and type 2.

Brandi ML, Gagel RF, Angeli A, Bilezikian JP, Beck-Peccoz P, Bordi C,… Marx SJ.
Journal of Clinical Endocrinology and Metabolism, 2001 Dec; 86(12):5658-71. A Review.