Recommended medical check-ups and examinations for XLH – English

PATIENT MATERIALS

English

This resource provides a clear overview of the recommended medical monitoring and follow-up for people with X-linked hypophosphatemia (XLH) across all ages. Developed by Phosphatdiabetes e.V. and based on the latest international clinical practice recommendations, it translates expert guidance into an accessible, practical format for patients, families, and healthcare professionals .

It outlines age-specific follow-up schedules for children, adolescents, and adults, covering clinical assessments, laboratory tests, imaging, and multidisciplinary care, including specific considerations for patients receiving burosumab treatment. The resource supports consistent, high-quality care and helps patients better understand their long-term monitoring needs.

Note: Resource summaries and translations into relevant languages were produced with the assistance of ChatGPT.


* The information on this website is for general information only and does not replace medical advice from your doctor or healthcare professional. Always discuss your personal situation with your treating healthcare team. Healthcare systems and medical practice may differ between countries, so some information may not apply to your country. Copyright of third-party documents is respected. We are not responsible for the content of external websites linked from this site.