Lisa und Paul und das AGS

PATIENT MATERIALS

English

This document is designed to help young patients and their parents understand congenital adrenal hyperplasia (AGS) through a simple, relatable story. It follows Lisa and Paul, two children with AGS, explaining in kid-friendly terms how their body lacks cortisol and why taking daily hydrocortisone tablets is essential for their well‑being. The guide aims to ease medication routine, empower children with knowledge about their condition, and support families in managing AGS together.

Deutsch

Dieses Dokument soll jungen Patienten und ihren Eltern helfen, die kongenitale adrenale Hyperplasie (AGS) anhand einer einfachen, nachvollziehbaren Geschichte zu verstehen. Es begleitet Lisa und Paul, zwei Kinder mit AGS, und erklärt in kinderfreundlichen Worten, warum ihr Körper kein Cortisol produziert und weshalb die tägliche Einnahme von Hydrocortison-Tabletten so wichtig für ihr Wohlbefinden ist. Der Ratgeber soll den Medikamentenalltag erleichtern, den Kindern Wissen über ihre Erkrankung vermitteln und die Familien dabei unterstützen, das AGS gemeinsam zu bewältigen.

Note: Resource summaries and translations into relevant languages were produced with the assistance of ChatGPT.


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