AGS-Eltern- und Patienteninitiative e.V.

WEBSITE

English

AGS‑Initiative e.V. is a pan‑German nonprofit founded by parents and affected individuals in 1994 to support those with congenital adrenal hyperplasia (AGS), offering age‑tailored medical, psychosocial, and practical guidance across life stages
The website provides detailed resources on diagnosis, treatment, emergency care, family planning, and peer networks, plus regional contacts, events, and informational materials for affected families.

Deutsch

Die AGS‑Initiative e.V. ist eine bundesweite, gemeinnützige Organisation, die 1994 von Eltern und Betroffenen gegründet wurde, um Menschen mit adrenogenitalem Syndrom (AGS) zu unterstützen. Sie bietet altersgerechte medizinische, psychosoziale und praktische Beratung in allen Lebensphasen.

Die Website stellt ausführliche Informationen zu Diagnose, Behandlung, Notfallversorgung, Familienplanung und Selbsthilfe-Netzwerken bereit, außerdem regionale Ansprechpartner, Veranstaltungen und Informationsmaterialien für betroffene Familien.

Note: Resource summaries and translations into relevant languages were produced with the assistance of ChatGPT.


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