Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 27 EU member states+Norway that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
European Reference Networks (ERN) are virtual networks involving Reference Centres across Europe. They aim to tackle complex or rare diseases and conditions, that require highly specialised treatment and concentrated knowledge and resources. Rare patient cases can be discussed by a ‘virtual’ advisory board of medical specialists across different countries and disciplines in a dedicated and secure IT platform, constructed by the EU Commission specifically for ERNs. This way it is the medical knowledge and expertise that travel rather than the patients, who have the comfort of staying in their supportive home environments.
formation on Cross-border Healthcare
Through their treating physician, all patients can access a virtual consultation with Endo-ERN expert and their multidisciplinary teams (MDT) by using the Clinical Patient Management System (CPMS).
A virtual consultation can be used to:
The Endo-ERN experts and MDT team convene a patient panel with the information provided by the treating physician via the CPMS platform. After discussing the case in-depth, the experts can issue a report on the discussion to the treating physician with recommendations to help them manage the patient’s care and possible diagnosis.
ERNs are not directly accessible to individual patients. However, with the patient’s consent and in accordance with the rules of their national health system, patient cases can be referred to the relevant ERN member in their country by their Reference Centre.