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Endo-ERN at ECE2019
Like last year, we’ll be at the European Congress of Endocrinology 2019! This year the congress will take place in Lyon, France. You’ll be able to find us at a special Endo-ERN symposium and we’ll share a stand with EuRRECa again throughout the event!
More information on the date and time of the symposium will be announced.
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Update Clinical Patient Management System
The number of members registered and using the Clinical Patient Management System (CPMS) has increased greatly over the past year. However, the number of panels started and patients discussed is still remaining behind. Every member is encouraged to use the system to enrol patients, discuss patient panels, and schedule meetings within the system. If you need any help, don’t hesitate to contact us!
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Rare Disease Symposium Leiden
On the 30th of January the second ERN Symposium took place in the Leiden University Medical Center (LUMC) in Leiden, The Netherlands.
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ePAG meeting Leiden
From 1-3 February, 2019 our Endo-ERN ePAGs met in Leiden, The Netherlands to discuss the patient involvement and plans in the Endo-ERN Activities. Eight (of 14) ePAGs were present and one joined remotely.
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MTG 8: Thyroid meeting
Members of the MTG 8: Thyroid met in Paris, at Necker Enfants Malades University Hospital, on the 23rd of January 2019 to discuss the ongoing work and progress of the MTG and it’s subgroups. Chair of MTG8, Michel Polak, wrote a short report about the meeting.
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New information on affiliated partners
The European Commission has released new information about affiliated partners. Read about it here.
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European Patients’ Academy course succeeded
Between September 2017 and November 2018 Endo-ERN ePAG, Johan de Graaf, succeeded in completing The European Patients’ Academy (EUPATI) course together with approximately 50 European colleagues.
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EuRRECA newsletter
The second EuRRECa newsletter is now available! Read it here to stay up to date on the activities of the project.
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