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Newsletter December 2018

Posted on January 8th, 2019January 8th, 2019
by Endo ERN
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Newsletter December 2018
 

Best Wishes 2019

 

Update Clinical Patient Management System

cpms-activity-dec2018  

The number of members registered and using the Clinical Patient Management System (CPMS) has increased greatly over the past year. However, the number of panels started and patients discussed is still remaining behind. Every member is encouraged to use the system to enrol patients, discuss patient panels, and schedule meetings within the system. If you need any help, don’t hesitate to contact us!

 

read more

 

 
 
 

 

Meet the Endo-ERN CPMS Helpdesk

CPMS workshop for ERN experts  

Meet Danielle Steenvoorden and Julia Hoppmann! Together they form the Endo-ERN CPMS helpdesk and will be able not only to answer any questions you might have, but also assist in setting up panels. Danielle is situated in the LUMC in Leiden, The Netherlands and will assist with adult cases. Julia is situated in the UKSH in Lubeck, Germany and will assist with paediatric cases. They are determined to get the CPMS fully functional for our members, so if you need any help, please don’t hesitate to send them an email!

 

read more

 

 
 
 

 

Animation Video ERNs

  ernvideo2018

The EU released a new animation video on ERNs for patients and healthcare professionals.

 

watch video here

 

 
 
 

 

Care for Pituitary Adenoma Leiden

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The third Care for Pituitary Adenoma Leiden (CAPITAL) workshop for pituitary tumour specialists will take place on 6 and 7 June, 2019, in Leiden, the Netherlands.

 

read more

 

 
 
 

 

Endo-ERN General Assembly 2019

GA2018_Budapest_newsletter  

Don’t forget to register for the Endo-ERN General Assembly on March 12, 2019, if you have not done so yet! It is important that every HCP is represented, however, only 1 representative per HCP can attend. Exemptions to this rule may apply to those that also fulfil a role in the Steering Committee or in the Advisory Board.

 

To book a room in the hotel, please find the reservation link in your invitation. The preliminary programme can be found on our website.

 

register here

 

 
 
 

 

Upcoming events

  • 3rd International RadboudUMC Adrenal Masterclass
  • 3rd Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies
  • General Assembly 2019
  • Care for Pituitary Adenoma Leiden
  • ENEA Workshop
  • 9th Biennial Congress of the European Society of Endocrine Surgeons

view all events

 

 
 
 
 
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