Reigster now for the 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by IRDiRC, ERDERA, and Rare Diseases International. This event will take place 9–10 December 2025 in Heidelberg, Germany — with both in-person and virtual participation options.

Clinical Research Networks (CRNs) form the backbone of efficient and collaborative rare disease research. By linking sites, laboratories, patient organisations, funders, and regulators, they help overcome geographic fragmentation, pool limited patient populations, and harmonise data and protocols across borders.

This conference, titled Mobilising the Global Rare Disease Clinical Research Ecosystem aims to highlight and tackle key challenges and opportunities, such as:

• Developing and scaling Real-World Evidence (RWE) approaches and interoperable data frameworks

• Advancing diagnostic and trial technologies (including devices)

• Learning from experiences in low- and middle-income countries

• Engaging patients, stakeholders, funders, and policymakers more effectively

• Designing resilient, sustainable CRN models across different settings

Check out the website for more information and register now to attend either online or in-person.