Endo-ERN ePAGs are engaged in all aspects of Endo-ERN. They are also involved in the running of their own organisations providing support, helpful information and building community.

Recently Chris Breen represented the Klinefelter’s Syndrome Association (KSA) at the European Society of Endocrinology (ESE) Endocrine ACADEMY Clinical Update. A great opportunity to engage with clinicians and other patient support groups and raise awareness of their organisation.

In addition, the KSA Conference takes place 17-19 May and features expert speakers providing information to to patients.

Topics include:

• Updates on research projects
• Supporting your child’s mental health
• How your employer can make workplace adjustments to help you cope in a work environment
• Gender identity and KS/SSY
• X and Y Fertility
• Chromodiversity