Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 27 EU member states+Norway that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
Programme starts at 9:30 and ends at 13:00 followed by a Farewell lunch. Scroll down for the full programme.
Parallel educational interactive sessions
MTG2: Disorders of Calcium & Phosphate Homeostasis
MTG3: Genetic disorders of Glucose & Homeostasis
10 minutes update aims and core activities
25 minutes interactive session prioritising (activity) suggestions given by the chairs
Move to the plenary room
Parallel educational interactive sessions
MTG6: Hypothalamic and Pituitary Conditions
MTG7: Sex Development and Maturation
10 minutes update aims and core activities
25 minutes interactive session prioritising (activity) suggestions given by the chairs
Coffee/tea break
Transversal Working Group on Genetic Testing
Thomas Eggermann, University Hospital Aachen
Registries, data management and analysis (WP5)
Ana Priego, EuRRECa Quality Manager
Clinical Practice Guidelines & CDSTs (WP7)
Olaf Dekkers, Chair WP7, Leiden University Medical Center, Netherlands /Anna Nordenstrom, Chair WP7, Karolinska University Hospital, Stockholm, Sweden
Tools for accessibility and integration of Ukraine (WP8/WP9)
Alberto Pereira, Endo-ERN Coordinator, adult chair
Closing remarks and voting session
Albert Pereira/Olaf Hiort Endo-ERN Coordinators
Farewell lunch
Back to Day 1 programme