CHECK OUT: NEW EuRREB website

EuRREB.eu is the new and improved website for Europe’s rare disease registry for Rare Endocrine and Bone Conditions.

On the new site you will find overview pages specifically tailored to our main visitors. These overview pages help to guide you to the information you are looking for whether you are a clinician, researcher, or patient. Also check out these new and improved pages:

  • Overview of all our condition specific modules and all our active studies
  • Participating Centres (table which can be sorted on country or city)
  • Patient Information Folders – more languages soon to come!
  • Publications with the latest performed studies
  • How to obtain registry data or ethics approval
  • FAQs – For Clinicians/researchers, Patients and Affiliate registries
  • Ways to get involved and stay updated!

 

Your are invited to explore the site and join EuRREB in strengthening collaboration across Europe.

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