Kick-off Rare Diseases GO FAIR

On the 15th of January 2018, the kick-off meeting of the Rare diseases GO FAIR implementation network will be held in Leiden, the Netherlands.

FAIR data stands for Findable, Accesible, Interoperable, and Reusable. It is of great importance to ERNs that data is made available in internationally sustainable principles.

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1st LUMC MODY course

On Janurary 17th, 2018, the LUMC is hosting a course on Maturity Onset Diabetes of the Young (MODY) in Leiden, The Netherlands.

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Training programme for RD registries

The European Commission’s Joint Research Centre (JRC) is organising it’s first workshop as part of a training programme for RD registries on the 8th & 9th of February, 2018, in Northern Italy.

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ICE 2018

The 18th International Congress of Endocrinology will be held on from 1-4 December, 2018 in Cape Town, South Africa.

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