ATTEND: The Patient’s Voice sessions

The Patient’s Voice sessions will take place in the Congress Theatre on Sunday and Monday, bringing together patient advocates and clinicians to demonstrate how collaboration can improve disease awareness and managment. Sessions that might be of interest:

 

Sunday, 11 May, 15:50-16:20: What’s new in Turner Syndrome (TS) with speakers:

  • Arlene Smyth, UK
  • Caroline Brain, UK
  • Aneta Gwalik-Starzyk, Poland
  • Anne Skakkebaek, Denmark
  • Claus H. Gravholt, Denmark

Monday 12 May, 13:00-13:30: Congenital Hyperinsulinism International – Uniting patients with the care they need with speakers:

  • Henrik Christesen, Denmark
  • Lauren Lopez, USA
  • Julie Raskin, USA
  • Nino Khledze, Georgia
  • Sarah Flanagan, UK

Monday, 12 May 16:55-17:25: Prader-Willi Syndrome (PWS): A multisystem disorder with important endocrine issues with speakers:

  • Charlotte Hoybye, Sweden
  • Susanne Blichfeldt, Denmark
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