FEEDBACK: Endo-ERN website

No doubt you have noticed a new look and feel to the Endo-ERN website.  The site has been updated with improved navigation to make finding information more intuitive.  

Improving the site and content is an ongoing task for us, and we would like to solicit your feedback on the site now you have had a chance to use it for a few months.  

There is a survey on the website that you can access with a blue feedback tab.  If you would please take a few moments to complete the form it would be highly appreciated.  

Your important feedback will help us plan future development and content improvement of the site.  As announced at the GA we have 3 development priorities for 2024:

• Completion and launch of the publication database
• Improving findability and organisation of the patient information
• Creating a showcase for Endo-ERN endorsed and created guidelines 

Please help us to identify the next improvements!  

DISCOUNT AVAILABLE: Handbook of ENDOCRINOLOGY and METABOLISM

The first European endocrinology textbook developed by the members of European Reference Network on Rare Endocrine Conditions (Endo-ERN).

Discover this extensive illustrated textbook of endocrinology created primarily for students and residents.  Find out more about the 20% discount.  

REGISTER: Upcoming webinars

Endo-ERN continues to deliver informative webinars that increases the expertise in the network.  Register now for these upcoming webinars:  

Multiple Endocrine Neoplasia Type 2:  New insights from childhood to adult 

Turner syndrome and fertility options 

There are over 60 recorded webinars available on the Endo-ERN YouTube channel.  

Check out our YouTube and subscribe now.  

UPCOMING: Events including Endo-ERN endorsed

Check out the in-person educational opportunities upcoming in 2024.   

• International Meeting on Rare Disorders of the RAS-MAPK Pathway
• *I-DSD Symposium 2024
• World Orphan Drug Congress 2024
• European Society Paediatric Endocrinology (ESPE)

*Endo-ERN endorsed events

If you have an event upcoming that you would like to have endorsed click the button below to find out how to apply for accreditation.  

NOW OPEN: Clinical Exchange Programme call for applications

The first call for applications for the Endo-ERN Clincial Exchange Programme is now open! Early application is encouraged with the call closing on July 1, 2024.

PRESENTATIONS AVAILABLE; Endo-ERN GA & EuRREB Symposium

Endo-ERN members recently gathered over 3 days in Milan for the Endo-ERN General Assembly and EuRREB Registries Symposium.  There were many informative sessions focused on rare disease registries, main thematic groups and of course networking.  

Presentations and for some sessions recordings are now available.  

CHANGES: MTG chair changes

This year has been a year of changes for our MTG chairs.  We would like to thank the chairs that are stepping down for their support and dedication especially during the formative years of the network.  

To the new chairs we say "Welcome!" and look forward to working with you.

MTG3 Paediatic Chair 

Departing:  Thomas Danne, Germany//New:  Felix Reschke, Germany

MTG4 Adult Chair

Departing:  Attila Patocs, Hungary//New:  Frederic Castinetti, France 

MTG5 Adult Chair 

Departing:  Gudmundur Johannsson, Sweden//New:  Charlotte Hoybye, Sweden

MTG5 Paediatric Chair 

Departing:  Irene Netchine, France//New:  Susan O'Connell, Ireland

MTG7 Paediatric Chair 

Departing:  Olaf Hiort, Germany//New:  Hedi Claahsen, Netherlands

MTG8 Paediatric Chair 

Departing:  Juliane Leger, France//Athanasia Stoupa, France 

SAVE THE DATE: ERICA GA & ERN Research Conference

The European Rare Disease Research Coordination and Support Action consortium (ERICA) 4th General Assembly & ERN Research Conference will take place 11-13 December, 2024 in Udine, Italy.

This event is hosted by MetabERN.  

There will also be a Call on Abstracts related to ERN Research.  The (preliminary) program will be published here as soon as available.  

ENGAGED: Endo-ERN ePAGs

Endo-ERN ePAGs are engaged in all aspects of Endo-ERN. They are also involved in the running of their own organisations providing support, helpful information and building community.