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About
- About
  European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
- About ERN
- About Endo-ERN
- Governance
- Reference Centres
- ERN Information Materials
Specific Expertise
- Specific Expertise
  According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
- Overview
- Adrenal (MTG1)
- Disorders of Calcium &
  Phosphate Homeostasis (MTG2)
- Genetic Disorders of Glucose &
  Insulin Homeostasis (MTG3)
- Genetic Endocrine
  Tumour Syndromes (MTG4)
- Growth &
  Genetic Obesity Syndromes (MTG5)
- Pituitary (MTG6)
- Sex Development &
  Maturation (MTG7)
- Thyroid (MTG8)
Patients
- Patients
  Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
- Introduction
- European Patient Advocacy Group
- How to Become an Endo-ERN patient representative
- Endo-ERN Patient Representatives
- Conditions
- Cross-border Healthcare
- Patient information materials
Activities
- Activities
  Endo-ERN activities are defined in five work packages throughout different phases.
- Knowledge Generation
- Research Activities
- Clinical Activities & eHealth
- Guidelines
- Other Projects
Publications

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Endo-ERN Newsletter

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Endo-ERN Newsletter Archive

The complete list of newsletters sent by Endo-ERN since april 2017.

Endo-ERN Newsletter November 2020
Endo-ERN Newsletter October 2020
Endo-ERN Newsletter September 2020
Endo-ERN Newsletter July-August 2020
Endo-ERN Newsletter June 2020
Endo-ERN Newsletter May 2020
Endo-ERN Newsletter April 2020
Endo-ERN Newsletter February-March 2020
Newsletter January 2020
Newsletter November & December 2019
Newsletter October 2019
Newsletter September 2019
Newsletter July – August 2019
Newsletter June 2019
Newsletter May 2019
Newsletter April 2019
Newsletter February-March 2019
Newsletter January 2019
Newsletter December 2018
Newsletter November 2018
Newsletter October 2018
Newsletter September 2018
Newsletter Summer 2018 – erratum
Newsletter May 2018
Newsletter April 2018
Newsletter March 2018
Newsletter February 2018
Newsletter January 2018
Newsletter December 2017
Newsletter November 2017
Newsletter October 2017
Newsletter September 2017
Newsletter August 2017
Newsletter April 2017

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Endo-ERN
Coordinating Center
P.O. Box 9600
2300 RC LEIDEN
The Netherlands

info@endo-ern.eu

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Endo-ERN is a European Reference Network co-funded by the European Union’s Health Programme.

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