Available now: Rare Disease Day Supplemental

Endo-ERN in partnership with Endocrine Connections has created a Supplemental for Rare Disease Day 2023.

Available online, and as a shareable document, this special collection is overseen by the Editor-in-Chief, Adrian Clark and our network’s guest editors George Mastorakos (National and Kapodistrian University of Athens), Violeta Iotova (Medical University of Varna), and Jérôme Bertherat (Hospital Cochin).  

Endo-ERN Rare Disease Day Poster

Rare Disease Day (February 28) is the perfect opportunity to remind your colleagues about your involvement with Endo-ERN.

We created an A3 poster that you can print and display in your department and/or around your hospital to raise awareness of rare disease and your involvement with Endo-ERN.

ERICA webinar: Essential requirements before thinking about a clinical trial

In the ERICA WP4 Clinical Trial Support webinar Essential requirements before thinking about a clinical trial we will provide an overview of considerations before starting a clinical trial in a study site.

WEBINAR: Getting to Know Rare Disease Registries

Endo-ERN is hosting a series of webinars to showcase the programmes and resources that are available to support the rare disease community.

To kick-off the series we are delighted that our EuRRECa colleagues will present on the topic of Rare Disease Registries. 

WEBINAR: Genetic diagnosis of azoospermia: from choromosomes to whole exome analysis

The members of Endo-ERN continue to share their expertise via webinars. This month members of main thematic group (MTG) 7 present Genetic diagnosis of azoospermia: from choromosomes to whole exome analysis.