This month our newsletter features some funding opportunities including the 2025 Clinical Exchange Programme with an application deadline at the end of this month.  ERDERA's Joint Transnational Call for Proposals on Rare Disease Therapies and the applicant-driven Innovative Health Initiative.  

Are you working with industry or maybe would like to?  The European Rare Disease Research Coordination and Support Action (ERICA) and Together4RD are hosting a series of webinars on this topic - check it out below and share with your potential or current partners.  

Enjoy the read!

Endo-ERN team

NOW OPEN: Clinical Exchange Programme call for applications

The second call for applications for the Endo-ERN Clincial Exchange Programme is now open! Early application is encouraged with the call closing on 30 November, 2024 for exchanges in 2025.

PREPARE: Continuous Monitoring 2025

As we approach the end of 2024, we also approach the next Continuous Monitoring exercise that will take place between January and February 2025.

Before the end of the year there are 2 key things every Endo-ERN member should check:

CALL: Innovative Health Initative

The Innovative Health Initiative Joint Undertaking (IHI JU) aims to enable the cross-sectional integration of technologies, know-how, products, services and workflows for people-centred healthcare. Download the Strategic Research and Innovation Agenda.

CALL: 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe and beyond to submit collaborative projects focused on “Pre-clinical therapy studies for rare diseases using small molecules and biologicals - development and validation.

REGISTER: European Reference Networks - a key EU infrastructure to partner for research activities, the why and the how

Interested in partnering with ERNs for research? This informative webinar on Monday, 2 December 17:00-17:45 will provide a comprehensive overview of ERNs’ core mission within the European healthcare landscape, detailing the resources, expertise, and infrastructure ERNs offer, and illustrating how collaborations between ERNs and the private sector can accelerate rare disease research and drug development,benefitting both industry goals and public health outcomes.  

REGISTER: Upcoming webinars

Endo-ERN experts continue to deliver informative webinars that increases the expertise in the network.  Accreditation is being sought for these webinars in most instances, check individual listings.    

The new genetics of Turner syndrome webinar 

Management of genetic obesity and food seeking behaviour e.d. in BBS/ALSTROM/PRADER WILLI syndromes/use of GLP-1 agonists in these conditions 

Care of adult patients with Klinefelter syndrome 

Update SGA, GH treatment beyond childhood

Long-term outcomes in CAIS

Register now for these upcoming webinars.  Remember if you cannot attend live, register anyway and you will receive a recording.

REGISTER: Upcoming Workshops Patient Rights and Rare Diseases in the European Union

The European Commission is hosting workshops in several countries with a focus on patient rights in cross-border healthcare and European Reference Networks. Registration is now open for the joint Belgium/Netherlands workshop taking place 19 November 1000-1700 (CET) Brussels, Belgium.  The presentations will be in Dutch with translation available in English and French. 

ACCREDITED: Endo-ERN webinar recordings

The Endo-ERN YouTube channel has over 70 videos containing high-quality rare disease education.  

Currently three of the recordings are accredited for CME by  the European Accreditation Council for Continuing Medical Education (EACCME).  By watching the video and completing the survey afterwards you can receive a certificate.  The accreditation will expire in early 2025 so if you are interested you are encouraged to view the recordings now.   

Turner syndrome and fertility options 

Fibrous Dysplasia with emphasis on hypophosphataemia

SWEET:  the role of a worldwide registry to investigate rare diabetes 

ABSTRACTS OPEN: European Paediatric Neurology Society

The 16th Congress of the European Peadiatric Neurology Society (EPNS) offers classification of the event as follows: A for Acute, B for Brain, Health & Science and C for Chronic. We invited you to be part of this unique ABC format to learn, teach, meet, network and exchange ideas on an international stage.