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Endo-ERN ePAGs - Orlando, FL, USA

The work of Endo-ERN’s ePAGs took them across the Atlantic recently as they attended the International Coalition of Organizations Supporting Endocrine Patients (ICOSEP) meeting in Orlando, FL, USA.

Endo-ERN ePAGs - Brussels

Diana Kwast-Hoekstra of the Dutch Pituitary Foundation participated in the Eurordis: Rare Disease Week in Brussels. Diana is an Endo-ERN ePAG representative for MTG1.

ERICA WEBINAR: Definition of an orphan drug by the EMA

Our partner European Rare Disease Research Coordination and Support Action consortium (ERICA) is hosting a series of webinars focused on Clinical Trial Support.

The topic of the next webinar Definition of an orphan drug by the EMA and will be held on Tuesday, March 28 from 1230-1330.

WEBINAR: Genetic diagnosis of azoospermia: from choromosomes to whole exome analysis

The members of Endo-ERN continue to share their expertise via webinars. This month members of main thematic group (MTG) 7 present Genetic diagnosis of azoospermia: from choromosomes to whole exome analysis.

WEBINAR: Getting to Know Rare Disease Registries

Endo-ERN is hosting a series of webinars to showcase the programmes and resources that are available to support the rare disease community.

To kick-off the series we are delighted that our EuRRECa colleagues will present on the topic of Rare Disease Registries.

UPDATE: Endo-ERN will attend the ECE 2023, Istanbul, Turkey

Endo-ERN will attend the European Congress of Endocrinology (ECE), Istanbul, Turkey 13-16 May, 2023.

The Endo-ERN project office will host a stand. Stop by for more information about EuRRECa, virtual consultations (CPMS) and any other membership questions that you might want to ask.