NEW ePAG: Welcome Bernd Rosenbichler

Endo-ERN is happy to welcome a new ePAG to the organisation. Bernd Rosenbichler of Alström Syndrom e.V., Germany has joined MTG3. He shares his motivation to join Endo-ERN:

REGISTER: Upcoming webinars

Endo-ERN continues to deliver informative webinars that increases the expertise in the network.  Register now for these upcoming webinars:  

Adrecocortical carcinoma - diagnosis and personalized management 2024 

Turner syndrome and fertility options 

Our ERICA colleagues have an upcoming webinar:  c4c trials, education and training,  

There are over 60 recorded webinars available on the Endo-ERN YouTube channel.  Added last week The mysterious links among cilia, centrosomes and insulin resistance:  what have learned from human genetics?

Check out our YouTube and subscribe now.  

UPCOMING: Events including Endo-ERN endorsed

Check out the in-person educational opportunities upcoming in 2024.   

• European Conference on Rare Diseases 2024
• International Meeting on Rare Disorders of the RAS-MAPK Pathway
• *I-DSD Symposium 2024
• World Orphan Drug Congress 2024

*Endo-ERN endorsed events

If you have an event upcoming that you would like to have endorsed click the button below to find out how to apply for accreditation.  

PARTNERSHIP: Endo-ERN X WODC

Endo-ERN is delighted to announce our partnership with The World Orphan Drug Congress Europe. This event is the largest and most established orphan drug & rare disease event worldwide.

Meet over 2000 attendees, hear from 250 leading speakers, and connect with 130 exhibitors as we bring together experts from the start-to-finish of orphan drugs. 

LIVE: Endo-ERN at European Congress of Endocrinology

Are you attending the European Congress of Endocrinology (ECE) in May?  So are the Endo-ERN project staff and EuRREB team!

Endo-ERN is delighted to have the support of the European Society of Endocrinology (ESE) and we will be on-site with an exhibition booth (number 1) and a symposium featuring the launch of the Endo-ERN Guideline on Familial Hyperaldosteronism.   

We know that you the Endo-ERN experts will be busy at the ECE and we would like to know more.  If you would kindly complete this survey. 

It isn't too late to attend the ECE in-person or ECE@Home.   Check out the progamme at a glance.

RESOURCE: Alström Syndrome

Recently the Alström community came together to learn from one another and share their stories.  There is an excellent repository of recordings and helpful infographics. 

RESOURCE: EJP RD Virtual Platform please feedback

Are you a current user of the Virtual Platform (VP) from European Joint Programme on Rare Disease (EJP RD)?  If yes please take some time to feedback on the current development prototype.   

If you don't know what the VP is check it out!  The VP is a growing network of Findable, Accessible, Interoperable and Reusable (FAIR) resources, ready to serve the rare disease research community.