Endo-ERN Newsletter June 2023

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Enjoy the read!

Endo-ERN team


ERN Clinical Exchange Programme: Amsterdam to Basel

Inspiration and innovation were the driving forces behind Dr Dirk Jan Stenvers application to the ERN Exchange Programme.


5-Year Evaluation Draft Reports

Individual HCP draft reports of the 5 Year Evaluation for first call members were  released on 1 June (comments possible until 1 August), while those members that  underwent an onsite audit will receive this by 15 June (comments possible until 15 August). 

Please note your deadline for submitting comments on your own draft report. Instructions on how to respond to these comments should be provided alongside your report. For those that are required to make an improvement plan, we will offer support where we can and will schedule further Q&A sessions to deal with queries after the draft reports are released.

We are happy to announce that Endo-ERN network evaluation has received preliminary score of 93.2%, passing the mark for satisfactory! 

We have worked together to build Endo-ERN over the last 5 years and it is great to see our collective efforts appreciated and indeed praised. A network cannot exist without members, and our achievements during the last 5 years is a promising sign of what is to come in the future. 

The final report will be issued later this year following review of comments. 

REGISTER: Upcoming webinars

Did you register for our upcoming webinars?  Register using the button below.  

  • Puberty induction in the two sexes - a case based discussion
  • ESE Talks...Use of EuRRECa databases to enhance our understanding of XLH and parathyroid carcinoma
  • Management of thyroid nodules in children (ETA guidelines)
  • Getting to Know Virtual Consultations 
  • Klinefelter syndrome - from genomics to the clinic 

You can also view recordings of past webinars on our YouTube channel - subscribe now!

ERICA SURVEY: ERNs Clinical Research

This survey aims to collect information on the status quo on ERNs and Clinical Research.
It is developed by ERICA WP4 Clinical Trial Support on the basis of the previous survey delivered in 2018.