Endo-ERN Newsletter June 2021 ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌
 
June 2021
 
 
 
 
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Endo-ERN webinar: Update on the management of 46,XX Ovarian Dysgenesis and Primary Ovarian Insufficiency

On Thursday September 9th at 15:00 – 16:00 CET an Endo-ERN webinar about “Update on the management of 46,XX Ovarian Dysgenesis and Primary Ovarian Insufficiency” will be given by Philippe Touraine from APHP-Pitié Salpêtrière Hospital in France.
 
 
 
 
 

Recording Endo-ERN webinars

The recordings of following webinars are now available for viewing at your own convenience.

  • Clinical and genetic aspects of pheochromocytoma
  • Clinical trials with new drugs in PWS
  • Update on congenital hyperinsulinism
 
 
 
 
ERN logo_Exchange Programme 2021-2022
 

Newsletter ERN Exchange Programme

The ERN Exchange Programme is designed to share knowledge and stimulate collaboration between healthcare professionals in the European Reference Networks (ERNs). In this newsletter, an update is given on where the Exhange programme stands and information about the EU Digital COVID Certificate is provided that will greatly facilitate implementation of the programme. Also an impression is given of the first exchange visits that are taking place.

 
 
 
 
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ESPE 2021 ONLINE: Endo-ERN symposium

The Endo-ERN Symposium this year will be chaired by ERN-Coordinator Alberto Pereira and will be held on Friday September 24th from 10:20 - 11:20 CET.

Programme:

Congenital Hypothyroidism ERN Guidelines - Michel Polak
Patient expectation and unmet needs in XLH - Martha Kirchhoff
Lifelong management of Carney Complex - Jérôme Bertherat

 
 
 
 
 
Endo-ERN logo

Endo-ERN General Assembly 2022

The Endo-ERN General Assembly 2022 will be held on Tuesday 15 and Wednesday 16 February 2022 in Milan, Italy. The day prior to the General Assembly EuRRECa will hold their annual meeting.

If the COVID-19 situation at that time doesn’t allow to hold a face to face meeting, we will of course try to find flexible and suitable alternatives.

 
 
 
 
 
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Prestigious EJPRD ERN Research Mobility Fellowship for drs. Eva Coopmans and drs. Oana Danila

The Research Mobility Fellowships of the European Joint Program on Rare Diseases (EJP RD) – The European Reference Networks (ERN) are awarded twice a year to a leading physician or researcher to gain new competencies and expertise in a European institution that specializes in research on rare diseases.

 
 
 
 
 
Redlich Antje

New MTG4 chair

We have the pleasure to inform you that prof. Antje Redlich has been elected as the new Paediatric chair of MTG4-Genetic endocrine tumour syndromes.

We congratulate Antje with her new position as Endo-ERN MTG4 co-chair and look very much forward to collaborate with her on the activities that will enable us to accomplish the mission of our network.

 
 
 
 
 

Upcoming Events