Endo ERN
Find an expert
Endo ERN
Search
  • Rare Endocrine Conditions

    Endocrine Conditions

    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

    Go to overview

    Categories

    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
    • MTG3Genetic Disorders of Glucose & Insulin Homeostasis
    • MTG4Genetic Endocrine Tumour Syndromes
    • MTG5Growth & Genetic Obesity Syndromes
    • MTG6Hypothalamic and Pituitary Conditions
    • MTG7Sex Development & Maturation
    • MTG8Thyroid
  • About Us

    About Us

    Endo-ERN is a network of 100+ Reference Centres (RCs) in 27 EU member states+Norway that offers access to clinical experts for patients with rare endocrine conditions.  

    Go to overview

    Who we are

    • About Endo-ERN
    • What we do
    • Reference centres
    • Work packages
    • Project team

    Information

    • Events
    • FAQ
    • Newsletter
    • Contact
    • ERNs
  • For Professionals

    For Professionals

    Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.  

    Our Network

    • About Endo-ERN
    • Find a Reference Centre

    Research

    • Registries
    • Publications
    • Clinical Trials

    Support Tools

    • Virtual Consultations
    • Guidelines
    • COVID-19

    Training & Education

    • Webinars
    • Exchange Programme
  • For Members

    For Members

    If you work at a member institution this page will help with your Endo-ERN contributions.  

    Go to overview

    Quick Links

    • Cite Endo-ERN
    • CPMS 2.0
    • GA2026
    • The Journal

    Evaluation

    • Continuous Monitoring Exercise
    • 5-year evaluation
    • HCP Performance System

    Network Participation

    • Event Endorsement
    • Member Survey
    • Webinar Planning
    • MTG Representatives

    Membership Management

    • Update Member Contacts
    • Request Disease Area Expansion
    • Termination Policy
  • For Patients

    For Patients

    Access to rare disease expertise without the need to travel is a core ERN objective.  Our ePAGs contribute to all Endo-ERN activities.  

    Go to overview

    Patient information

    • What are European Reference Networks?
    • Cross-border healthcare
    • Rare endocrine conditions
    • Patient materials

    ePAG information

    • European Patient Advocacy Groups
    • Patient representatives
    • How to become an Endo-ERN ePAG
  • Search
  • Rare Endocrine Conditions
  • About Us
  • For Professionals
  • For Members
  • For Patients
  • Search
  • Rare Endocrine Conditions
  • About Us
  • For Professionals
  • For Members
  • For Patients
  • Search
Endo ERN
Find an expert
Search

Endo-ERN Newsletter June 2021

Posted on July 16th, 2021July 16th, 2021
by Endo ERN
No Meta Header set for this Custom Post Type

{subject}

{preheader}
{webversion} | {unsub} | {profile}

 
June 2021
 

 
 
 

endo-webinars_210909

 
 
 

 

Endo-ERN webinar: Update on the management of 46,XX Ovarian Dysgenesis and Primary Ovarian Insufficiency

On Thursday September 9th at 15:00 – 16:00 CET an Endo-ERN webinar about “Update on the management of 46,XX Ovarian Dysgenesis and Primary Ovarian Insufficiency” will be given by Philippe Touraine from APHP-Pitié Salpêtrière Hospital in France.

Register here

 

 
 
 

 

Recording Endo-ERN webinars

The recordings of following webinars are now available for viewing at your own convenience.

  • Clinical and genetic aspects of pheochromocytoma
  • Clinical trials with new drugs in PWS
  • Update on congenital hyperinsulinism

Overview webinars

 

 
 
 

ERN logo_Exchange Programme 2021-2022

 

Newsletter ERN Exchange Programme

The ERN Exchange Programme is designed to share knowledge and stimulate collaboration between healthcare professionals in the European Reference Networks (ERNs). In this newsletter, an update is given on where the Exhange programme stands and information about the EU Digital COVID Certificate is provided that will greatly facilitate implementation of the programme. Also an impression is given of the first exchange visits that are taking place.

Read the newsletter here

 

 
 
 

espe-2021-final-logo

 

ESPE 2021 ONLINE: Endo-ERN symposium

The Endo-ERN Symposium this year will be chaired by ERN-Coordinator Alberto Pereira and will be held on Friday September 24th from 10:20 – 11:20 CET.

Programme:

Congenital Hypothyroidism ERN Guidelines – Michel Polak
Patient expectation and unmet needs in XLH – Martha Kirchhoff
Lifelong management of Carney Complex – Jérôme Bertherat

Registration ESPE 2021

 

 
 
 

 
Endo-ERN logo

Endo-ERN General Assembly 2022

The Endo-ERN General Assembly 2022 will be held on Tuesday 15 and Wednesday 16 February 2022 in Milan, Italy. The day prior to the General Assembly EuRRECa will hold their annual meeting.

If the COVID-19 situation at that time doesn’t allow to hold a face to face meeting, we will of course try to find flexible and suitable alternatives.

 

 
 
 

 
ern_fellowship_lumc

Prestigious EJPRD ERN Research Mobility Fellowship for drs. Eva Coopmans and drs. Oana Danila

The Research Mobility Fellowships of the European Joint Program on Rare Diseases (EJP RD) – The European Reference Networks (ERN) are awarded twice a year to a leading physician or researcher to gain new competencies and expertise in a European institution that specializes in research on rare diseases.

Read more

 

 
 
 

 
Redlich Antje

New MTG4 chair

We have the pleasure to inform you that prof. Antje Redlich has been elected as the new Paediatric chair of MTG4-Genetic endocrine tumour syndromes.

We congratulate Antje with her new position as Endo-ERN MTG4 co-chair and look very much forward to collaborate with her on the activities that will enable us to accomplish the mission of our network.

MTG4-Genetic endocrine tumour syndromes

 

 
 
 

 

Upcoming Events

  • ESPE ONLINE 22-26 September 2021
  • ERN Workshop CLINICAL RESEARCH: THE BASICS & BEYOND WORKSHOP IN CLINICAL EPIDEMIOLOGICAL RESEARCH FOR ERNs 30 September – 1 October 2021
  • ESPE Science Symposium 29-30 October 2021
  • Endo-ERN General Assembly 15-16 February 2022

 

 
 
 
 
You have received this email because you have subscribed to Endo-ERN as {email}. If you no longer wish to receive emails please {unsub}
Read our privacy policy.
Endo-ERN Coordinating Center: Leiden University Medical Center
The Netherlands
© {year} Endo-ERN, All rights reserved
 
 

Share this on TwitterShare this on Linkedin