Endo-ERN Newsletter: ERN Clinical Exchanges & NEW webinar ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­
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Endo-ERN Newsletter December 2022
 
 
 
  
 

This Endo-ERN newsletter includes reports from three different ERN Clinical Exchanges. Each with a different objective and approach.  Maybe you or a colleague are thinking about applying to the Clinical Exchange Programme and these examples are certainly inspiring. The deadline is fast approaching and you can find out more by clicking this link.

Also, we have a new webinar that features the authors of the recently published paper: Patient journeys: A tool to help patients with rare endocrine diseases.  Even if you cannot make it live, register to receive the recording. 

We also have 2023 event info from our EuRRECA/EuRR-Bone colleagues.  

 

Enjoy the read!
Endo-ERN Team

  
 
 
  
 

REGISTER NOW: Webinar featuring patient journeys

  Patient journeys: A tool to help patients with rare endocrine diseases

Patient journeys are instruments developed by EURORDIS, The Voice of Rare Disease Patients in Europe, to collect patients’ experiences; they may identify gaps and areas deserving improvement, as well as elements positively considered by affected persons. This webinar is a presentation by the authors of the recently published paper of the same title.

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ERN Clinical Exchange Program : Luxembourg to Germany

ERN Clinical Exchange Program: Luxembourg to Germany

A successful exchange between Dr Marianne Becker, Centre Hospitalier de Luxembourg and Prof Semler, University Hospital in Cologne. Dr Becker provided the following report.

“I had the chance to visit Prof. Oliver Semler at the University Hospital in Cologne on the 27th and 28th of July 2022 in the setting of the…

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ERN Clinical Exchange Program: Modena to Oslo

ERN Clinical Exchange Program: Modena to Oslo

Dr Sara De Vincentis shares her experience in Oslo and her inspiration for further collaboration.

“I have really enjoyed my Endo-ERN exchange period at the Oslo University Hospital, Rikshospitalet.

Like my belonging Unit of Endocrinology, Azienda Ospedaliero-Universitaria of Modena, the section of Specialized Endocrinology of Oslo is a tertiary-level European centre with a…

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ERN Clinical Exchange Program: Europe and Beyond

  ERN Clinical Exchange Program: Europe and Beyond

Dr. Arianne Dessens from the Child & Psychiatry Department at Erasmus MC participated in an Endo-ERN Exchange to facilitate the foundation of an international learning network for disorders/difference of sex development (DSD). Her detailed summary outlines the experience of developing a specialized learning network using the ERN Clinical Exchange opportunity.

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eurreca-eurrbone
 

News & events from EuRRECA/EuRR-Bone

Mark your calendar and save the date!

Monday, April 3, 2023

  • The first joint EuRRECa/EuRR-Bone symposium will take place in the morning at Academy Building in Leiden, the day before Endo-ERN General Assembly. Click here to register and see the programme here.
  • Faisal Ahmed's Inaugural Lecture will take place during the afternoon at Universiteit Leiden.
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Register Now!
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