Endo-ERN Newsletter February 2021 ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­ ͏ ‌     ­
 
February 2021
 
 
 
 
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The European Reference Network on Rare Endocrine Conditions together with the Journal Endocrine released a special supplemental issue on rare endocrine conditions on Rare Disease Day 28 February 2021.

 
 
 
 
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Endo-ERN webinar: Pituitary Gigantism FIPA, AIP and XLAG

On Tuesday March 23rd at 17:00 – 18:00 CET an Endo-ERN webinar about “Pituitary Gigantism: FIPA, AIP and XLAG” will be given by Albert Beckers and Adrian F. Daly from Centre Hospitalier Universitaire de Liège.

 

 
 
 
 
 

Recording Endo-ERN webinars

The recording of MTG5 webinar about “Molecular diagnostic testing of imprinting disorders and related growth disturbances” and the CPMS webinar "How to enroll a patient, start a panel and upload files to a panel" are now available for viewing at your own convenience.

 
 
 
 
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ERN Exchange Programme 2021-2022

The ERN Exchange Programme 2021-2022, funded by the European Commission, has officially been launched as per March 1, 2021. The programme is a great opportunity for clinical exchanges in ERNs.

What/who are we are looking for?

• Healthcare professionals, expanding (or sharing) their knowledge by visiting another ERN member center

• Hosting centres, providing an interesting program for the visiting health care professional(s)

 
 
 
 
 

ERN recommendations on COVID-19 vaccination for patients with rare diseases

All ERN Coordinators have worked together to establish recommendations on the COVID vaccination program for rare disease patients. Prof. Nicoline Hoogerbrugge, as chair of the ERN coordinators group, presented these recommendations to the European Health Security Committee on 10 February. The European Commission will distribute the recommendations to all Member States.
 
 
 
 
 
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New WP3 Adult Chair

We have the pleasure to inform you that prof. Jérôme Bertherat has been elected as the new Adult chair of the Endo-ERN Workpackage 3 “ Research & Science”.

We congratulate him with his new position within the Steering Committee and look very much forward to his further guidance in the continuation of the ongoing successful activities and the development of new activities is close collaboration with the ePAG co-chair and all members that will enable us to accomplish the mission of our network.

 
 
 
 
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ERN Research Mobility Fellowships Call

The call for Research Mobility Fellowships will be launched on the 15th of March, which aims to support PhD students, Postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence.

The exchange can be carried out within the same ERN (Full Members and Affiliated Partners), between different ERNs (Full Members and Affiliated Partners) and between ERN Full Members / Affiliated Partners and non-ERN institutions. Either home or host (secondment) institution must be a Full Member or Affiliated Partner of an ERN at the time when the application is submitted, as well as during the proposed period of the training stay.

Successful applicants should acquire new competences and knowledge related to their research on rare diseases, with a defined research plan and demonstrable benefit to the ERN of the home and/or host institution. The research mobility fellowships are meant to cover stays of 4 weeks to 6 months duration.

 
 
 
 
 

Endo-ERN Covid-19-webpage

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Endo-ERN has created a page dedicated to Covid-19, especially for patients with rare endocrine conditions who need information, and clinicians treating COVID-19 patients with rare endocrine conditions.

This page is continuously updated with the most relevant information from EU countries and European initiatives and now including with an update on the COVID vaccination program, priorities for specific patients with rare diseases.

 
 
 
 
 

Upcoming events