Endo-ERN Newsletter April 2021 ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌
 
April 2021
 
 
 
 
 

Upcoming Endo-ERN webinars

 

26 May : Rare diabetes caused by endoplasmic reticulum stress – clinical features and novel patients’ stem cell-based models

14 June: Clinical and genetic aspects of pheochromocytoma

15 June: Clinical trials with new drugs in PWS

 
 
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📅 Wednesday 26 May

⏰ 16:00 - 17:00 CET

 
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📅 Monday 14 June

⏰ 15:00 - 16:00 CET

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📅 Tuesday 15 June

⏰ 17:00 - 18:00 CET

 
 
 
 
 

Recording Endo-ERN webinars

The following recordings of MTG6 webinars are now available for viewing at your own convenience.

  • Development and integration of VBHC in pituitary care in an Endo-ERN reference center
  • Pituitary Gigantism FIPA, AIP and XLA
  • Central congenital hypothyroidism; clinical characteristics and cognitive outcome in early detected patients
 
 
 
 
eECE2021
 

Endo-ERN at eECE 2021

The annual meeting of the European Society of Endocrinology will be again held online.

Endo-ERN will be present with:

A joint symposium together with the ESE-RD committee on Wednesday May 26th from 10:30 – 12:00 CET and a virtual booth where informational materials, newsletters and posters will be available for all participants.

Symposium programme - Wednesday May 26th:

10:30 - 10:45 Endo-ERN: Strengthening patients and physician collaboration

Prof. Dr. Olaf Hiort, Germany

10:45 - 11:10 Endo-ERN, EU ERN network– where it started Living with “Hypophosphatemia” Transitional care path for patients

Prof. Agnès Linglart, France

11:10 - 11:35 Living with “Androgen insensitivity syndrome” & Multidisciplinary care team and research

Prof. Martine Cools, Belgium

11:35 - 12:00 Imprinting disorders and growth Endo-ERN – next steps and collaboration with ESE 

Prof. Irene Netchine, France

 

 
 
 
 
 
ERICA

ERICA - Kick off meeting and 1st General Assembly

On Thursday 27th May 2021 (from 10.00 – 16.45 h) & Friday 28th May 2021 (from 10.00 – 15.45 h) the kick-off meeting and 1st General Assembly of the European Rare Disease Research Coordination and Support Action (ERICA) will be held.
 
 
 
 
 
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EJP RD: ERN Workshops - Advances in diagnostic and therapeutic methods for lymph flow abnormalities

A face-to-face workshop on Advances in Diagnostic and Therapeutic Methods for Lymph Flow Abnormalities (consisting of presentations by experts in the field of lymph flow and interactive sessions to train participants in performing and interpreting MR lymphangiography) is being organised by Dr Willemijn M. Klein on 9 –10 September 2021, from 09.00 to 17.00 CET, in the auditorium of the Radboud University Medical Center, Nijmegen, the Netherlands. The workshop is open to medical specialists affiliated to an ERN Full Member or Affiliated Partner institution and who are involved in diagnosing or treating patients with lymph flow abnormalities. Registration closes on May 31st, and those selected to participate from among the applicants will be informed by June 30th of their selection.

 
 
 
 
 
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Endo-ERN General Assembly

On Tuesday & Wednesday 13-14 April 2021, the 5th virtual Endo-ERN General Assembly was organised with 131 participants.

The meeting consisted of a morning programme on both days and in the afternoon MTG specific session were organised. Prior to the GA, the Steering Committee & Advisory board meeting was held.

 

 
 
 
 
 

Upcoming Events