Endo-ERN

Members
Newsletter

Patients
Professionals
News
Events
Contact
ERN
FAQ

About
Specific Expertise
Patients
Activities

About
- About
  European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
- About ERN
- About Endo-ERN
- Governance
- Reference Centers
- Work Packages
Specific Expertise
- Specific Expertise
  According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
- Overview
- Adrenal (MTG1)
- Disorders of Calcium &
  Phosphate Homeostasis (MTG2)
- Genetic Disorders of Glucose &
  Insulin Homeostasis (MTG3)
- Genetic Endocrine
  Tumour Syndromes (MTG4)
- Growth &
  Genetic Obesity Syndromes (MTG5)
- Pituitary (MTG6)
- Sex Development &
  Maturation (MTG7)
- Thyroid (MTG8)
Patients
- Patients
  Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
- Introduction
- European Patient Advocacy Group
- How to Become an Endo-ERN patient representative
- Endo-ERN Patient Representatives
- Conditions
- Cross-border Healthcare
- Information materials
Activities
- Activities
  Endo-ERN activities are defined in five work packages throughout different phases.
- Knowledge Generation
- Research Activities
- Clinical Activities
- Current Projects