Update: Rare Disease Week in Brussels

Foto van ik in Brussel 2023

Diana Kwast-Hoekstra of the Dutch Pituitary Foundation participated in the Eurordis: Rare Disease Week in Brussels. Diana is an Endo-ERN ePAG representative for MTG1.

While in Brussels, Diana and other patient representatives had the opportunity to raise awareness of rare disease in meetings with key MEPs and other policy-makers.

The delegation had Five Asks:

  1. Advancing the development of orphan medicines
  2. Improving disability assessments
  3. Acting on mental health needs
  4. Optimising the European Health Data Space
  5. Launching a European Action Plan for Rare Diseases

Thank you Diana and Eurordis for keeping rare disease at the top of the European health agenda!

This entry was posted in General.