Per February 1st 2018, our adult chair of the Main Thematic Group of Pituitary, Nienke Biermasz, was appointed as professor of Medicine at the LUMC/Leyden University. This Friday the 18th of January, 2019 the official ceremony will take place where she will officially accept her new position, by giving her inaugural lecture in Leiden (Academy building Leiden University). Continuați să citiți
Between September 2017 and November 2018 Endo-ERN ePAG, Johan de Graaf, succeeded in completing The European Patients’ Academy (EUPATI) course together with approximately 50 European colleagues. Continuați să citiți
Read the December edition of the Endo-ERN newsletter now! Meet our new CPMS Operational helpdesk and read about the many upcoming events. Continuați să citiți
The European Commission has published the full report on the 4th ERN conference, held in Brussels, Belgium, on the 21st and 22nd of November, 2018. Continuați să citiți
Read the November edition of the Endo-ERN newsletter now! We report on the 4th ERN conference, update on the Clinical Patient Management System, and show a new video made by the EU commission on the functioning of the ERNs! Continuați să citiți
On December 6th we were at the CPMS workshop for ERN experts in Brussels, Belgium. The European Commission hosted this workshop to inform the employees of the operational help desks of the different ERNs of the functions of the CPMS and the best way to go about solving problems that might come up. Continuați să citiți
RD-Action published a report on the conclusions and next steps from the workshop ‘How ERNs can provide added value in the area of clinical research’. Continuați să citiți
The Italian National Centre for Rare Diseases, Istituto Superiore di Sanità, recently published the article ‘Art and Science’ in the Journal Lancet Neurology Continuați să citiți
The EU released a new animation video on ERNs Continuați să citiți
Endo-ERN was present at the 4th ERN Conference on 21 and 22 November in Brussels, Belgium! We were present with ten delegates from five different countries. Both adult and paediatric endocrine experts, as well as patient representatives, attended the event. The lively conference featured two full days of presentations and debates, driven by plenary sessions and eight parallel workshops. Continuați să citiți