Continuous Monitoring Programme
To evaluate the performance of ERNs and ensure they are working towards their goal, the European Commission devised a set of 18 core performance indicators
to ensure that both our network and members continue to meet the requirements and high standards expected of all ERNs in contributing to the rare disease community. At least once a year all HCPs involved in the ERNs provide insight into their data.
As part of the monitoring program, we have created a database of Clinical Trials and registered studies our members are running or partaking in across our various rare endocrine disease MTGs.