The endocrine service in Greater Glasgow & Clyde NHS Health Board has a long track record of caring for people with rare endocrine conditions. The Health Board includes maternity and neonatal services and has seamless transfer of patients from birth to adulthood. Paediatric and adult endocrine services are all based on one site, co-located with diagnostic services. Glasgow has an established steroid biochemistry service and is quickly expanding its diagnostic molecular genetic service, which includes panels for DSD and hypogonadotrophic hypogonadism which also include several genes associated with adrenal insufficiency and hypopituitarism.
Glasgow is the national centre for adrenal venous sampling, performs all IPSS for the West of Scotland and has expertise in laparoscopic surgery. For many rare endocrine conditions, Glasgow works within a Scottish Managed Clinical Network. Internationally, it plays an active and leading role in a number of fields including DSD, Bone and Adrenal. The International DSD/CAH Registry and the European Registries for Rare Endocrine Conditions (EuRRECa) are projects that are managed from Glasgow. Because of its geography, Scotland is a leader in innovative forms of Technology Enabled Care. There are dedicated MDT clinics for DSD (incl. CAH), primary bone disorders, secondary bone disorders, Prader Willi, Turners, Congenital Hyperinsulinism, genetic and sporadic endocrine tumours, late effects including BMT and gender dysphoria. The Glasgow service links to other centres in Scotland through networks such as the Scottish Paediatric Endocrine Group and the Scottish DSD Network.
NHS Greater Glasgow and Clyde Board is participating in the following Main Thematic Groups (MTGs):
Contact information
1053 Great Western Rd
G12 0YN Glasgow
United Kingdom
General representatives
- Faisal Ahmed (Main representative, Paediatric)
- Guftar Shaikh (Substitute representative, Paediatric)
Representatives per Main Thematic Group (MTG)
- MTG1 AdrenalFaisal Ahmed (Paediatric) and Colin Perry (Adult)
- MTG2 Disorders of Calcium & Phosphate HomeostasisFaisal Ahmed (Paediatric)
- MTG3 Genetic Disorders of Glucose & Insulin HomeostasisGuftar Shaikh (Paediatric)
- MTG4 Genetic Endocrine Tumour SyndromesGuftar Shaikh (Paediatric) and Colin Perry (Adult)
- MTG5 Growth & Genetic Obesity SyndromesGuftar Shaikh (Paediatric)
- MTG6 PituitaryGuftar Shaikh (Paediatric)
- MTG7 Sex Development & MaturationFaisal Ahmed (Paediatric)
- MTG8 ThyroidGuftar Shaikh (Paediatric)
Representatives per Work Package (WP)
- WP2 E-Health & ICTFaisal Ahmed (Paediatric) and Jillian Bryce (Paediatric)
Participants
Also the following people are participating for this Reference Centre:
Colin Perry(7)
