Video reportages European Reference Networks

After a successful launch of the European Reference Networks earlier this year, the 24 established networks are now developing their joint activities on rare and complex diseases. The added value for patients and their families will become visible in the coming months.

To illustrate the potential of the ERNs the European Commission has produced four video reportages, with real-life case studies: of an Italian patient with bone disorders, a Dutch heart patient, a Spanish girl who underwent a transplantation and a French representative of kidney patients. Telling their personal stories, we can show different aspects of the ERNs. A fifth, [...]

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ENEA workshop on ‘Hyperprolactinemia and other endocrine causes of infertility’

The ENEA workshop on ‘Hyperprolactinemia and other endocrine causes of infertility’ will take place on September 7–9, 2017 in Saint Petersburg. The workshop invites experts from all over the world to present the latest updates on the epidemiology, genetics, treatment and management of comorbidities in an interactive environment.

The ENEA is offering to all ENEA members 15 travel grants worth EUR 750 each. In addition the abstracts submitted by young endocrinologists & researchers will be evaluated by the ENEA Young Investigator Committee and the best will be invited as speakers to present their work in Saint Petersburg.

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Endo-ERN Steering Committee & Advisory Board meeting

On the 9th of October the Endo-ERN Steering Committee and Advisory Board meeting will be held in Leiden, The Netherlands. It will be the third official meeting between the Steering Committee and the Advisory Board and it will function to discuss the past and ongoing activities of Endo-ERN, and to plan the activities of the upcoming months.

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Ombudsman announces Award for Good Administration winners

The European Ombudsman, Emily O’Reilly, celebrated the range and quality of the nominations for the Award for Good Administration in a ceremony in Brussels on Thursday.

Launched in October, the Award attracted 90 nominated projects from the main EU institutions as well as many agencies and other bodies.

Prizes were awarded in 7 categories with the overall Award for Good Administration 2017 going to the Commission’s DG Health whose nominated unit developed EU collaboration in the sharing of vital information and expertise to help millions of Europeans suffering from rare diseases.

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International Days of Clinical Endocrinology

The 60th International Days of Clinical Endocrinology (Henri-Pierre-KLOTZ) will take place on June 8th and June 9th 2017 in Paris, France. Theme of the conference will be “From the shortest to the tallest”.

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Symposium on the Calcium Sensing Receptor (CaSR)

The 3rd international symposium on the Calcium Sensing Receptor (CaSR) will take place from May 11th to May 13th in Florance, Italy.

The symposium will bring together basic, translational and clinical scientists from different disciplines who study the molecular biology, physiology, and pathophysiology of the CaSR and clinical disorders of CaSR function.

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3rd DSDnet Training School 2017

The 3rd DSDnet Training School will take place from September 28th to September 30th in Budapest, Hungary as a postgraduate level course. The DSDnet Training School 2017 is under the topic: “Promoting Research in DSD”.

The Training School is aimed at Professionals from COST Countries in their early stages of career, from a medical or a scientific background.

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Newsletter April 2017: The first General Assembly

The European Reference Networks for rare and complex diseases (ERNs) were officially installed on 9 March 2017 at the 3rd conference on Rare diseases in Vilnius, Lithuania. The first General Assembly (GA) of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) was held on Monday 27 March 2017, in Leiden, The Netherlands.

The purpose of this first annual meeting was first to inform and update all members and other stakeholders on the mission, structure, and governance of Endo-ERN, and subsequently to approve the current application by the members via voting in order to be officially operational, and finally to [...]

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