RD-Conntect is an EU-funded integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. It provides user-friendly tools for data analysis and links different data types – omics (e.g. genomics), clinical information, patient registries and biobanks – into a common resource. Continuar a ler
Read the Endo-ERN May newsletter now! In this edition we announce our presence at the European Society for Paediatric Endocrinology meeting, you can read reports on multiple meetings such as the CAPITAL meeting, and the CPMS WebEx Webinars hosted by our operational helpdesk! Continuar a ler
The 2nd workshop for multidisciplinary teams caring for pituitary tumours, CAPITAL, was held on June 7 and 8, in Leiden, The Netherlands and was a big succes. Continuar a ler
The fourth Italian Endo-ERN meeting took place on the 7th of June, in Padova, Italy. The aim of the meeting, organised by the Italian national coordinators, was to bring together Italian and European Main Thematic Group coordinators, and the Italian European Advocacy Group. Continuar a ler
On May 18-19th, 2018, the European Academy of Pediatrics Spring Meeting was held in Sofia, Bulgaria as part of the initiatives during the Bulgarian Presidency of the Council of the European Union. Endo-ERN was represented at this meeting and discussed potential future collaboration options. Continuar a ler
Read the Endo-ERN April newsletter now! This edition contains the date for the Endo-ERN General Assembly 2019, more information about our stand at ECE2018, a video on CPMS, and much more! Continuar a ler
EuRRECa was present at the Rare Disease Registries Projects kick-off meeting in Luxembourg on 17th April. Continuar a ler
The European Commission has released a video on how to get started with the Clinical Patient Management System (CPMS). Continuar a ler
Fibrous dysplasia of bone: a good example of multidisciplinary expert care bridging Endo-ERN with BOND. Continuar a ler
Read the Endo-ERN March newsletter now! This edition contains an EU press release on Rare Diseases day and the 1 year anniversary of ERNs, announcement of an Endo-ERN and EuRRECa stand at ECE2018, Poster presentation at ECRD and much more! Continuar a ler