On June 7th 2019, in the old Venetian villa Contarini in Piazzola sul Brenta owing to the Venetian Region Counsil, the Endocrinology Unit of Azienda Ospedaliera-University of Padova (director Carla Scaroni, MD ) organized for Endo ERN group of Padova a meeting dedicated to medical doctors involved in child- and adult-hood endocrine rare diseases.

The aim of the meeting was to ameliorate the network among different care centers in our territory to uniform the standards of diagnosis and therapy for rare disease patients. Kontynuuj czytanie →

The knowledge of a raredisease is often spread throughout the world. That is why LUMC Leiden is a participant in Irdirc, a consortium with more than 40 member organizations from all over the world. In this video Prof. Aartsma-Rus explains how exactly they work together.

The first common newsletter about all ERNs has been published by DG Health and Food Safety.

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Updated information about the impact of BREXIT on access to IT tools and CPMS was presented by the European Commission during the 8^th ERN Coordinators Group Meeting on Monday June 24^th in Brussels. Please click here for the full presentation

The IRCCS Istituto Auxologico Italiano in Milan, Italy, has a post-doc position available in the Lab of Endocrine & Metabolic Research. Kontynuuj czytanie →

Read the May edition of the Endo-ERN newsletter now! We posted our pictures from ECE, talk about meetings, including the first patient meeting for Eastern European countries, and much more! Kontynuuj czytanie →