How to become an ePAG
Application via EURORDIS only will result in official installation of an ePAG. EURORDIS has played a crucial role in the development of ERNs through the EU directive on cross-border health care, and has established a European Patient Advocacy Group (ePAG) for each ERN disease grouping.
Prerequisites for an Endo-ERN ePAG representative:
Recommended for an Endo-ERN ePAG representative:
- The patient group should be registered in the normal legers, tax (exemption) registered, and have a public accessible website.
- The patient group should publish an annual report of its activities and its finances.
EURORDIS has also implemented an ePAG leadership capacity-building programme, which empowers ePAG patient representatives with the knowledge and skills they need to be able to effectively participate in ERN activities.