Associated patient organisations

Associated Patient organisations

Main thematic group Country Patient Organisation
Adrenal EU AdrenalNET
Adrenal Denmark Addison Foreningen Danmark
Adrenal France “Association Surrénales”
Adrenal The Netherlands Dutch Adrenal Society NVACP
Genetic endocrine tumour syndromes Germany German Network of Pituitary and Adrenal Diseases
Growth Germany BKMF e.V. (Federal Association for People of Short Stature and their Families)
Growth Italy A Fa DOC (Association of patient’s families with deficit of growth factor and similar disorder)”
Pituitary The Netherlands Dutch Pituitary Foundation
Pituitary Italy Associazione Italiana Displasia Setto Ottica eIpoplasia del Nervo Ottico
Disorders of sex development & maturation Germany AGS-Eltern- und Patienteninitiative e.V.
Thyroid The Netherlands Schildklierkanker werkgroep (SON)