ERICA GA & ERN Research Conference

The 4th ERICA General Assembly & ERN Research Conference will take place from 11-13 December, 2024 in Udine, Italy.

The call for abstracts and registration is now open.  

Hosted by MetabERN.

PREPARE: CPMS 2.0 coming soon

The new CPMS 2.0 system went live 31 May, 2024.

For the next few months Endo-ERN will continue to use the original CPMS, as we start preparation for a network-wide migration to the new CPMS 2.0 system. 

AVAILABLE: Pediatric Differentiated Thyroid Carcinoma

This module works as the European pediatric differentiated thyroid  carcinoma (ped-DTC) registry and collects detailed information about each patient regarding his/her demographic details and clinical information and serves as the umbrella for linked studies.

The main objectives are to collect prospective data on demographics, tumor characteristics, given treatment and outcome of pediatric DTC patients, aiming to increase knowledge on prevalence of pediatric DTC, its treatment across Europe and its outcome.

REGISTER: Upcoming webinars

Endo-ERN continues to deliver informative webinars that increases the expertise in the network.  Register now for these upcoming webinars:  

Fibrous Dysplasia with emphasis on hypophosphataemia 

Turner syndrome and fertility options 

In addition our partners the European Society of Endocrinology (ESE) and the European Society of Paediatric Endocronology (ESPE) are delivering rare disease webinars as well.  Register/save the date for these upcoming webinars:

ESE Talks...Genetic diabetes, focus on Wolfram syndrome

ESE Talks...Genetic endocrine tumours with a focus on pancreatic neuroendocrine tumours (NETs) 

ESPE Connect...Rare Thyroid Conditions 

Points to note:  all Endo-ERN webinar registrants receive a link to the recording.  Register now even if you cannot make the live webinar.  

There are over 60 recorded webinars available on the Endo-ERN YouTube channel.  

Check out our YouTube and subscribe now.  

UPCOMING: Events

Check out the in-person educational opportunities upcoming in 2024.   

September:  ESE Young Endocrinologists & Scientists (EYES) Meeting, Helsinki, Finland

October:  Adrenal failure - update on causes, diagnosis, treatment, crisis, and life expectancy

World Orphan Drug Congress 2024, Barcelona, Spain

Check out the interactive programme with over 200 talks planned.  Don't forget as an Endo-ERN member you are eligible for a free VIP pass.  

November:  European Society Paediatric Endocrinology (ESPE), Liverpool, England

December:  ERICA GA & ERN Research Conference 

If you have an event upcoming that you would like to have endorsed, click the button below to find out how to apply for endorsement.  

CHANGES: MTG2 chair changes

A recently confirmed changed to MTG2.  We would like to thank the chairs that are stepping down for their support and dedication especially during the formative years of the network.  

To the new chairs we say "Welcome!" and look forward to working with you.  

MTG 2 Adult chair

Departing:  Lars Rejnmark //  New:  Eva Kassi, Greece

MTG Paediatric chair 

Departing:  Agnes Linglart // New:  Corinna Grasemann

FREE MOOC: Innovative Therapies and Personalised Medicine for Rare Diseases

Exciting News! The European Joint Programme on Rare Diseases (EJP RD) Innovative Therapies and Personalized Medicine for Rare Diseases is officially live!

Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment!

CONTRIBUTE: An invitation to researchers & clinicians to complete ACT-EU initiative survey

The aim of the survey is to identify needs and priorities of academic stakeholders involved in clinical trials, integrating them into the work of ACT-EU.