ESPE Meeting

Endo-ERN was present at the 58th Annual Meeting of the European Society of Paediatric Endocrinology from 19-21 September 2019 in Vienna, Austria. Again we shared a stand together with EuRRECa , and more than 250 participants attended the specific Endo-ERN symposium with presentations of Hermann Muller, Arlene Smyth, Edward Visser & Olaf Hiort.

Steering Committee & Advisory Board meeting in Vienna

On Friday the 20th of September, Endo-ERN held its periodical SC/AB meeting at the ESPE Annual Meeting. In addition to an update by the coordinator, several new developments were presented and discussed.

Introducing Isabel Moenig

Isabel Moenig (Luebeck) recently started as paediatric clinical expert of our CPMS operational helpdesk. She visited Danielle Steenvoorden (Leiden) to discuss the developments and improvements of the Clinical Patient Management System (CPMS). We are delighted to welcome Isabel to our network.

"My name is Isabel Moenig and I am a paediatric resident in my third year in Luebeck, Germany. Together with Danielle Steenvoorden, operational helpdesk member of the Endo-ERN Coordinating Center in Leiden, I will support the experts in creating a panel, scheduling a meeting and making the video conferences a success. Therefore we would like to encourage everyone to invite us to new created panels, so we can help with the different steps. If there are any questions our email adress is cpmshelpdesk@endo.ern-net.eu"

Adult chair position MTG3

Andrew Hattersley had to step down as co-chair of Endo-ERN Main Thematic Group "Genetic Disorders of Glucose & Insulin Homeostasis". We are most grateful for his contribution to Endo-ERN. Since September Pietro Maffei (Azienda Ospedaliera di Padova, Italy) will now hold the Adult chair position of MTG3 together with Paediatric chair Thomas Danne (Kinderkrankenhaus auf der Bult Hannover).

Changes in European Patient Advocacy Group

We would like to thank Marika Porrey for all her support and time but unfortunately she had to step back as ePAG for MTG8 Thyroid. Since September we welcomed Ms. Kirchhoff as a new patient representative for MTG 2 'Disorders of Calcium & Phosphate Homeostasis'.