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ESPE2019
Endo-ERN will be present at ESPE2019 with a symposium and a shared stand with EuRRECa.
Program Endo-ERN Symposium on Friday 20 September 09:30 - 11:00
- 09:30 Olaf Hiort & Alberto Pereira : Progress in ENDO-ERN
- 09:45 Hermann Muller: "The Lifelong management of Childhood Craniopharyngioma”
- 10:15 Arlene Smyth (ePAG representative, Sex Development & Maturation)
- 10:30 Edward Visser: “Thyroid Signalling Defects”
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Call for new members to join existing European Reference Networks
The European Commission will launch in the coming weeks the first call for new members to join existing 24 "ERNs, following the adoption of the Commission Implementing Decision (EU) 2019/1269 of 26 July 2019 amending Decision 2014/287/EU.
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Endo-ERN website is now available in several languages
We proudly announce that our Endo-ERN website is now available in :
Spanish , Portuguese , Italian, Romanian, Hungarian, Czech & Bulgarian
This way, we hope to reach more patients, caretakers, medical specialists etc. closely involved in the field of rare endocrine conditions, all over Europe, all over the world.
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Medical treatment for MCT8 deficiency
Effectiveness and safety of the tri-iodothyronine analogue Triac in children and adults with MCT8 deficiency: an international, single-arm, open-label, phase 2 trial.
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MTG4 Webinar 10th of October
On Thursday October 10th at 16:00 – 17:00 CET (UK time 15:00 – 16:00), Jo Blair, Attila Patocs & Rajesh Takker are organising the webinar on New therapeutic targets for the treatment of pancreatic neuroendocrine tumours.
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Affiliated Partners
In addition to the 71 Full member reference centers, we are now delighted to welcome 11 Affiliated partners. The centers are located in Austria, Finland, Latvia, Norway & Malta.
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Endo-ERN General Assembly 2020
The Endo-ERN General Assembly 2020 will be held on Tuesday March 10th and Wednesday 11th in Milan, Italy. Prior to the General Assembly EuRReCa will hold their annual meeting and on Wednesday there is the opportunity for MTG & working groups specific meetings. More information about the event will be announced soon.
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New chair ERN Research Group
Prof. Alberto Pereira, coordinator of Endo-ERN, now chairs the ERN Research Group for the next year.
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Two statements adopted on ERNs integration into the national health systems and cooperation with industry
The ERN Board of Member States adopted updated guidance principles to frame collaboration between the ERNs and the industry, through a revision of its 2016 statement on the matter. It also adopted a new statement concerning recommendations and good practices to foster integration of the ERNs in national healthcare systems. For more information please visit the website of the European Commission.
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Rare endocrine diseases Padova meeting
On June 7th 2019, in the old Venetian villa Contarini in Piazzola sul Brenta owing to the Venetian Region Counsil, the Endocrinology Unit of Azienda Ospedaliera-University of Padova (director Carla Scaroni, MD ) organized for Endo ERN group of Padova a meeting dedicated to medical doctors involved in child- and adult-hood endocrine rare diseases.The aim of the meeting was to ameliorate the network among different care centers in our territory to uniform the standards of diagnosis and therapy for rare disease patients.
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Upcoming events
2019
2020
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