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Endo-ERN at ECE2019
Endo-ERN will be present at The European Congress of Endocrinology (ECE) 2019. Endo-ERN will host a Lunch Hub session: “ESE and Endo-ERN bridging education and virtual patient consultation for rare endocrine conditions throughout Europe” and will be present at an exhibition stand together with EuRRECa.
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Update Clinical Patient Management System
The number of members registered and using the Clinical Patient Management System (CPMS) has increased greatly over the past year. If you still encounter national and/or institutional barriers about implementation of these international consultations, please view the email we have sent our members with the relevant documentation regarding the security and privacy of the CPMS.
As the use and awareness of the system increases, please inform your local centres of the availability of the CPMS, so member centres may serve as an entrance point for non-member centres.
If you need any help, don't hesitate to contact us!
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CPMS Standard Operating Procedures
The Endo-ERN Operational Helpdesk has created Standard Operating Procedures (SOPs) for the use of the CPMS.
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Endo-ERN General Assembly 2020 - Save the date!
The Endo-ERN General Assembly 2020 will be held on Tuesday March 10th, in Milan, Italy! Save the date!
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New MTG1: Adrenal Chair
Meet Nicole Reisch, the new adult chair for the Main Thematic Group (MTG): Adrenal. She will be working together with the paediatric lead, Svetlana Lajic, and the ePAGs for MTG1, Johan Beun, Manuela Brösamle, and Jette Kristensen.
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Rare2030
Rare 2030 is a foresight study that gathers the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will lead us to a better future for people living with a rare disease in Europe.
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Care for Pituitary Adenoma Leiden
The third Care for Pituitary Adenoma Leiden (CAPITAL) workshop for pituitary tumour specialists will take place on 6 and 7 June, 2019, in Leiden, the Netherlands.
Register now!
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